Resources- Specific Diagnosis Card Catalog- Aarskog Syndrom
Who to Contact
Aarskog Syndrome Parents Support Group
62 Robin Hill Lane
Levittown, Pennsylvania, USA, 19055-1411
(215) 943-7131
E-mail: shannonfaith49@msn.com
The Aarskog Syndrome Parents Support Group's purpose is to educate the public about the features and possible delays or learning difficulties that may or may not effect some of children with Aarskog Syndrome and to offer support by mail or phone when needed.
The Support Group publishes a yearly newsletter, Aarskog News, for a minimal fee. The newsletter has a parent contact page for those wishing to get in touch with others who are affected by Aarskog. A new parent packet is available and contains past newsletters and articles that are on file. There is an article file containing writings by doctors on this syndrome from genetic books. There is a form available for those who wish to order specific articles.
The Magic Foundation
6645 W. North Ave.
Oak Park, IL 60302
708-383-0808
708-383-0899 (fax)
E-mail: mary@magicfoundation.org
Web: www.magicfoundation.org
This is a national non-profit organization providing support and education regarding growth disorders in children and related adult disorders, including adult GHD. The MAGIC Foundation is dedicated to helping children whose physical growth is affected by a medical problem, by assisting families of afflicted children through local support groups, public education/awareness, newsletters, specialty divisions (such as the Growth Hormone Deficiency Division), and programs for the children (pen pals/newsletters/birthday club).
MAGIC publishes a quarterly newsletter The Magic Touch that is free with membership or in case of financial need membership is free. The children produce a newsletter of their own called The Magic Kids. There are also pamphlets and brochures available and a video "Just say yes to Growth Hormone". MAGIC supports local groups and provides parent-to-parent matching through networking forms that connect families with the same disorder.
Where to go to Caht with Others?
Learn More About It
Aarskog Syndrom
From Online Mendelian Inheritance in Man (OMIM)
Aarskog- Scott Syndrom
From Online Mendelian Inheritance in Man (OMIM)
Features Listed For Aarskog Syndrom
Aarskog Syndrom
MedlinePlus Medical Encyclopedia
Links
The MAGIC Foundation for Children's Growth
Includes a variety of divisions such as the Growth Hormone Deficiency Division. See a further description above.
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