Resources- Specific Diagnosis Card Catalog- Agenesis of Corpus Callosum

Who to Contact

Agenesis of the Corpus Callosum (ACC) Network
5749 Merrill Hall, Room 18
University of Maine
Orono, Maine, USA 04469-5749
(207) 581-3119
Fax: (207) 581-3120
E-mail: um-acc@maine.maine.edu

The ACC Network gathers and disseminates information concerning Agenesis of the Corpus Callosum and related conditions to individuals with ACC, their families, and service providers. It also provides a directory and newsletter to foster communication among network participants. In addition, ACC Network has a bibliography of books and articles that are available to members and will provide referrals to other providers and organizations.

The ACC Network publishes, The Callosal Connection newsletter on an irregular basis at no cost. They offer a new parent packet that includes a variety of information: a chapter from a book on ACC; profiles of families with children that have ACC; newspaper articles about individual children with ACC; a newsletter; a questionnaire and accompanying consent form; a list of references; a list of resources; and a list of syndromes and conditions associated with ACC.

National Organization of Disorders of the Corpus Callosum
18032-C Lemon Drive
PMB 363
Yorba Linda, CA 92886
Tel: 714-747-0063
E-mail: info@corpuscallosum.org
Web: www.corpuscallosum.org

The National Organization of Disorders of the Corpus Callosum (NODCC) is a nonprofit corporation established in 2002 by professionals and parents. Our mission is to enhance the quality of life of individuals with agenesis of the corpus callosum and other disorders of the corpus callosum by gathering and disseminating information regarding these conditions.

NODCC works in collaboration with The ACC Network and several neuropsychological research programs. NODCC is supported in part by annual membership contributions. For information and support purposes, the NODCC develops written materials and videos, and sponsors conferences for families and professionals.

Where to go to Caht with Others?

Agenesis of Corpus Callosum List
The ACC-L is a forum for parents and others interested in the care of children who have agenesis of the corpus callosum.

Agenesis of Corpus Callosum
This group is open to anyone interested in making friends, sharing information and support with others affected by this disorder.

Learn More About It

Agenesis of the Corpus Callosum
From the National Institutes of Health

Agenesis of Corpus Callosum

Agenesis of the Corpus Callosum

Agenesis of Corpus Callosum
From Online Mendelian Inheritance in Man (OMIM)

Agenesis of Corpus Callosum With Neuronopathy
From Online Mendelian Inheritance in Man (OMIM)

Agenesis of the Corpus Callosum - eMedicine

About The Corpus Callosum - A Bridge Between the Hemispheres

Links

National Organization of Disorders of the Corpus Callosum

Corpal
A Support Group for the families and carers of those with Agenesis of the Corpus Callosum, and Aicardi Syndrome