Resources- Specific Diagnosis Card Catalog- Albinism & Hypopigmentation

Related Disorders: Hermansky-Pudlak Syndrome, Waardenburg Syndrome

Who to Contact

National Organization for Albinism and Hypopigmentation (NOAH)
PO Box 959
East Hampstead, NH 03826-0959
800 473-2310
603 887-2310
E-mail: webmaster@albinism.org
Web: www.albinism.org

NOAH provides information and support regarding albinism and related conditions, promotes public and professional education about these conditions, and encourages research and funding that will lead to improved diagnosis and management of albinism. NOAH provides networking for those with related albinism, such as minority groups.

NOAH publishes a newsletter, NOAH News, twice yearly, as well as information bulletins on particular topics. They also provide a network of local chapters and contact persons, and do referrals to state rehabilitation agencies, providers of equipment and materials.

Where to go to Caht with Others?

Albinism On-Line Community
At the NOAH web site — a place where people and families affected by albinism and others interested in learning more about the condition can ask questions and share experiences.

Learn More About It

What is Albinism?

Information for Teachers of Students with Albinism

Facts about Albinism

Frequently asked questions about Albinism

Links

National Organization for Albinism and Hypopigmentation [NOAH]

International Albinism Center at the University of Minnesota Home Page

Albinism World Alliance (AWA)

Albinism in Popular Culture

PanAmerican Society for Pigment Cell Research

Albinism - Through the Eyes of Bianca