Resources- Specific Diagnosis Card Catalog- Alpha-1 Antitrypsin Deficiency

Who to Contact

Alpha-1 Association
275 West Street, Suite 210
Annapolis, Maryland 21401
(410) 216-6916
(800) 521-3025
fax (410) 216-6983
E-mail: info@alpha1.org
Web: www.alpha1.org

The mission of this association is to improve, through support, education, and research, the quality of life of those affected by alpha1-antitrypsin deficiency.

Available services include: offering support and education to patients with A1AD, the general public, and the medical community; acting as a clearinghouse of information to assist healthcare professionals and individuals with A1AD; acting as an advocate for people with A1AD; and aiding in support of research of A1AD.

Where to go to Chat with Others?

Alpha1 Lungs and Life
The Alpha-1 Lungs & Life Support E Mail List is daily sharing among lung-affected Alphas, caregivers, health professionals, etc. using emails to communicate with the entire group at once. It is a powerful tool for support and education concerning Alpha-1 Antitrypsin Deficiency Disorder.

Learn More About It

Alpha-1-antitrypsin Deficiency - A Simplified Description
From the Alpha-1 Association

Understanding Alpha-1 Antitrypsin Deficiency
Medline Plus

Alpha-1 Antitrypsin Deficiency
Cleveland Clinic

Alpha-1 Antitrypsin Deficiency
Genetics Home Reference

Links

Alpha One Foundation

Alpha-1 Antitrypsin Deficiency National Association

AlphaNet Online

Texas Alpha-1 Resource Support Group

Alpha One International Registry (AIR)

Alpha1 Canadian Registry

Spiderspun Alpha1 Web Site