Resources- Specific Diagnosis Card Catalog- Alstrom Syndrome


  • Who to Contact
  • Where to Go to Chat with Others?
  • Learn More About it
  • Links
  • Who to Contact

    Alström Syndrome International
    14 Whitney Farm Road
    Mount Desert, Maine 04660
    800-371-3628 (toll-free)
    E-mail: jdm@jax.org
    Web: www.jax.org/alstrom

    Alström Syndrome International (formerly known as Society for Alström Syndrome Families) was formed in August, 1995 at the First International Alström Syndrome "Reunion" in Yarmouth, Nova Scotia. Alström Syndrome International is intended for families, friends, and professionals worldwide whose lives have been touched by Alström Syndrome. Alström Syndrome International is reliant on membership and charitable contributions to continue to foster its goals, and is a registered nonprofit corporation.

    Where to go to Chat with Others?

    Alström Syndrome discussion group
    For families, professionals and anyone interested in Alström Syndrome.

    Learn More About It

    What are the clinical signs of Alström Syndrome?

    Alstrom Syndrome
    from OMIM

    Links

    Alstrom Syndrom Society Web Page

    Alstrom Syndrome UK Support Group

    Alstrom Syndrome Canada

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