Resources- Specific Diagnosis Card Catalog- Anencephaly
Also see: Bereavement Support
Who to Contact
Anencephaly Support Foundation
30827 Sifton
Spring, Texas 77386
(888) 206-7526
Email: asf@asfhelp.com
Web: www.asfhelp.com
Our support group consists of families who have had a baby born with anencephaly. All of us chose to continue our pregnancies in the face of this devastating diagnosis. Our purpose is to help parents who wish to continue these pregnancies, and help examine the reasons why we believe carrying a child with anencephaly can be a fulfilling decision. We're here to share some personal stories, medical and causation information, support group resources, and other information.
Where to go to Chat with Others?
Anencephaly
This is was established for family members, friends, educators and medical professionals interested in sharing information and/or support for parents of affected children.
Blessings from Above
A Christian based support club for parents newly diagnosed and carrying anencephalic babies, or who have carried anencephalic babies to term.
Learn More About It
NINDS Anencephaly Information Page
Management of a Pregnancy With an Anencephalic Baby
LLUMC Legacy: Daring to Care: Chapter Four: Anencephalic Infant Donor Protocol
Personal Accounts
Jessicas Journey
A parent's personal experience, relating her daughter's story
A Site for Anencephaly and Anencephalic Angels
Links
Anencephaly Support Foundation
Anencephaly Net
Anencephaly Support and Information
Centering Corporation
"We are here for grieving people and those who care for and love them. We will provide the best grief literature
possible. We will develop needed books and provide caring workshops.