Resources- Specific Diagnosis Card Catalog- Anencephaly

Also see: Bereavement Support

  • Who to Contact
  • Where to Go to Chat with Others?
  • Learn More About it
  • Personal Accounts
  • Links
  • Who to Contact

    Anencephaly Support Foundation
    30827 Sifton
    Spring, Texas 77386
    (888) 206-7526
    Email: asf@asfhelp.com
    Web: www.asfhelp.com

    Our support group consists of families who have had a baby born with anencephaly. All of us chose to continue our pregnancies in the face of this devastating diagnosis. Our purpose is to help parents who wish to continue these pregnancies, and help examine the reasons why we believe carrying a child with anencephaly can be a fulfilling decision. We're here to share some personal stories, medical and causation information, support group resources, and other information.

    Where to go to Chat with Others?

    Anencephaly
    This is was established for family members, friends, educators and medical professionals interested in sharing information and/or support for parents of affected children.

    Blessings from Above
    A Christian based support club for parents newly diagnosed and carrying anencephalic babies, or who have carried anencephalic babies to term.

    Learn More About It

    NINDS Anencephaly Information Page

    Management of a Pregnancy With an Anencephalic Baby

    LLUMC Legacy: Daring to Care: Chapter Four: Anencephalic Infant Donor Protocol

    Personal Accounts

    Mary Elizabeth Karg

    Jessicas Journey
    A parent's personal experience, relating her daughter's story

    The story of Loren Joseph

    Michaela's Hope

    A Site for Anencephaly and Anencephalic Angels

    Our Prince Brandon

    Links

    Anencephaly Support Foundation

    Anencephaly Net
    Anencephaly Support and Information

    Anencephaly Information

    Anencephaly Page

    Ten Perfect Fingers

    Centering Corporation
    "We are here for grieving people and those who care for and love them. We will provide the best grief literature possible. We will develop needed books and provide caring workshops.

    back to top

    © Copyright 2005 ArcFIP. All Rights Reserved

    Site designed and maintained by proFilesInteractive