Resources- Specific Diagnosis Card Catalog- Angelman Syndrome


  • Who to Contact
  • Where to Go to Chat with Others?
  • Learn More About it
  • Links
  • Who to Contact

    Angelman Syndrome Foundation
    3015 E. New York Street, Suite A2265
    Aurora, IL 60504
    Toll-free: 800-432-6435
    Phone: 630-978-4245
    Fax: 630-978-7408
    E-mail: info@angelman.org
    Web: http://www.angelman.org/

    ASF's Mission is to advance the awareness and treatment of Angelman Syndrome through education, information exchange and research. The Foundation can put you in touch with Local Contacts within your region. Local Contacts are friends and families of ASF who have volunteered their time to answer questions. Regional Representatives are also available to answer questions, and are coordinators of social gatherings and mini-conferences. Both groups are excellent resources for services and referrals in your area. Or view our list of Professional References who are familiar with Angelman Syndrome. We also publish a quarterly newsletter which alerts members to upcoming meetings and events, provides helpful insights from AS families and friends, and informs of any new research and medical developments that could better the lives of AS individuals and their families.

    Canadian Angelman Syndrome Society
    PO Box 37
    Priddis, Alberta T0L 1W0
    Phone: 403-931-2415
    Fax: 403-931-4237
    E-mail: info@AngelmanCanada.org
    Web: http://www.angelmancanada.org/

    The Canadian Angelman Syndrome Society helps individuals with AS and their families achieve the optimum quality of life through education and interactive support, they have one local chapter and will help others who wish to start their own local chapters, by providing bylaws and instructions. There is a quarterly parent contact list for parent-to-parent matching. CASS publishes a quarterly newsletter, CASS Newsletter, and has available pamphlets in English and French.

    Where to go to Chat with Others?

    Angelman Syndrome Electronic Mailing Lists

    Families of Angelman Syndrome
    A place to talk about Angelman Syndrome

    Learn More About It

    Facts About Angelman Syndrome: Information For Families

    Angelman Syndrome Information
    from OMIM

    Angelman Syndrome - Information for Families & Professionals

    Angelman Syndrome Information Page
    From the National Institute of Neurological Disorders and Stroke

    Links

    Angelman Syndrome Foundation, USA

    Angelman Syndrome

    A little bit of Heaven on Earth
    Contains information in Français, English, Español, Português, and Deutsch.

    Angelman Syndrome - Army of Angels

    Angelman Syndrome Association Australia

    Angel Down Under

    International Angelman Syndrome Organization

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