Resources- Specific Diagnosis Card Catalog- Autism

See Also: Aspergers Syndrome, Social Skills, Organic Brain Syndrome, and PDD-N.O.S.

  • Who to Contact
  • Where to Go to Chat with Others?
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  • Who to Contact

    Autism Research Institute (ARI)
    4182 Adams Avenue
    San Diego, California, USA 92116
    Web: www.autismwebsite.com/ari/

    The Autism Research Institute is primarily devoted to conducting research, and to disseminating the results of research, on methods of preventing, diagnosing and treating autism and other severe behavioral disorders of childhood. They provide information based on research to parents and professionals throughout the world, and serve as a link between the parents of these children, who are widely scattered geographically, and researchers throughout the world who are in need of carefully diagnosed samples of children for research purposes. Such referrals are made only with the prior consent of the parents. ARI assist families directly by providing information by mail or phone and they have made the education of these children one of their important functions.

    ARI publishes a quarterly newsletter, Autism Research Review International, and has a publication list of information packets including, "Diagnosis of Autism," "Early Intervention," "Self-Help Skills," and "Speech Development and Speech Therapy." They also have a bibliography of books that includes, "Is This Your Child," "Children With Autism: A Parents Guide," and "Let Me hear Your Voice." There are also videotapes for rent or purchase, call or write for further listings and cost.

    ARI is in the process of establishing a research database to record and facilitate the analysis of biomedical data. The Autism Research Institute hosts a national conference; call for further information.

    Autism Society of America
    7910 Woodmont Avenue, Suite 300
    Bethesda, Maryland, USA 20814-3015
    (301) 657-0881
    (800) 328-8476
    Web: www.autism-society.org

    ASA promotes lifelong access and opportunity for all individuals within the autism spectrum, and their families, to be fully participating, included members of their community. Education, advocacy, public awareness efforts and the promotion of research are all goals of ASA. The society is the leading source of information and referral on autism to parents, professionals, and members of the general public who are concerned with this disability.

    ASA has local chapters, a listing can be requested for individual states, and will assist with the start up of a local support chapter. They publish a bi-monthly newsletter, Advocate, that is free with membership and several brochures. There is a new parent packet, "Getting Started", that includes local sources of information, reading list, the Nichcy News Digest, and professional information. ASA also has a video "Into The Light" from the International Conference in Toronto, order forms are available.

    Cure Autism Now
    5455 Wilshire Blvd., Suite 715
    Los Angeles, CA 90036
    1-323-549-0500
    1-888-828-8476
    E-mail: info@cureautismnow.org
    Web: www.cureautismnow.org

    Cure Autism Now is an organization of parents, physicians, and researchers, dedicated to promoting and funding research with direct clinical implications for treatment and a cure for autism. The largest private funder of autism research, since its founding in 1995 Cure Autism Now has directed over $10 million to support research projects and a crucial scientific resource - the Autism Genetic Resource Exchange (AGRE). AGRE is the world's first collaborative gene bank that contains information on families with more than one child with autism.

    OAR - Organization for Autism Research
    2111 Wilson Boulevard, Suite 600
    Arlington, VA 22201
    (703) 351-5031
    E-mail: OAR@autismorg.com
    Web: www.autismorg.com

    The Organization for Autism Research (OAR) is a non-profit organization formed and led by parents and grandparents of children and adults with autism. Its purpose is to put applied science to work in providing answers to questions that parents, families, individuals with autism, teachers, and caregivers confront each day.

    National Alliance for Autism Research (NAAR)
    414 Wall St., Research Park
    Princeton, New Jersey 08540
    (609) 430-9160
    888-777-NAAR
    Email: naar@naar.org
    Web: www.naar.org

    The National Alliance for Autism Research (NAAR) is a national nonprofit, tax-exempt organization dedicated to finding the causes, prevention, effective treatment and, ultimately, cure of the autism spectrum disorders. Until NAAR was established by parents in 1994, there was no national nonprofit organization in the United States devoted to funding and otherwise accelerating biomedical research in autism and related disorders. The founders of the National Alliance for Autism Research hoped that this organization would be exactly what its name suggests-- a nationwide alliance of families, researchers and others concerned with autism united in their efforts to fund and accelerate autism research. NAAR was created in a spirit of optimism and excitement over the opportunities for promising research in autism enabled by remarkable recent advances in the neurosciences and other scientific fields.

    Where to go to Chat with Others?

    Atism Resources- Online Discussion

    Learn More About It

    Autism: 20 Questions and Answers
    From the Treatment and Education of Autistic and related Communication handicapped CHildren (TEACCH) Division

    Autism: Advice to Parents
    Answers Compiled from an Autism Mailing List

    Autism: Frequently Asked Questions
    Answers Compiled from an Autism Mailing List

    Autism: What is it?
    From the Autism Society of America

    Tips for Running a Social Group for Teens with Autism

    Autism: Interventions and Strategies for Sucsess
    Six articles about educational and behavioral intervention. View on site or download print version. Many excellent strategies

    Schafer Autism Report
    A daily e-mail listing and index of everything published, said or written about autism in the mainstream and scientific media

    Links

    General Information and Associations - United States

    Centers for Disease Control (CDC)

    National Institute for Mental Health (NIMH)

    National Institute for Child Health and Human Development

    National Institute on Deafness and other Communication Disorders

    Applied Behavior Analysis Resources for Recovery from Autism, PDD, and Hyperlexia

    Autism Network International

    Autism Resources
    Maintained by John Wobus

    Autism Society of America

    Center for the Study of Autism

    The National Alliance for Autism Research (NAAR)

    University Students with Autism and Asperger's Syndrome

    General Information and Associations -- International

    Autism Independent United Kingdom

    Autism India

    Autistic Association Singapore

    Non-English Sites

    Autisme France

    El Autismo/PDD -- United States (written in Spanish)
    Del Centro Nacional de Informacion Para Ninos y Jovenes con Discapacidades

    Federación Autismo España. Asociación Nuevo Horizonte -- Spain

    Visión Global del Autismo -- United States (written in Spanish)
    Del Centro para el Estudio del Autismo

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