Resources- Specific Diagnosis Card Catalog Biliary Atresia
Who to Contact
Biliary Atresia and Liver Transplant Network
3835 Richmond Ave., Box 190
Staten Island, New York 10312
(Phone/Fax): 718-987-6200
E-mail: OrganTrans@msn.com
Web: www.transweb.org
Provides a support network for families of children born with biliary atresia (both pre- and post-liver transplant), via telephone contact, newsletters, and other written publications. Acts as liaison between families and health care professionals and among all families. Promotes to the public the importance of organ donation and transplantation
Children’s Liver Association for Support Services
27023 McBean Parkway #126
Valencia, CA 91355
Toll-free: 877-679-8256
Fax: 661-255-0353
E-mail: info@classkids.org
Web: www.classkids.org/
Children’s Liver Association for Support Services (C.L.A.S.S.) is an all-volunteer, nonprofit organization dedicated to serving the emotional, educational, and financial needs of families coping with childhood liver disease and transplantation. Our goal is to be both a service to families and a valuable resource for the medical community.
CLASS has a telephone helpline, newsletter, national networkingm and direction financial assistance program.
Where to go to Chat with Others?
Biliary Atresia Network
An online support group for families who are dealing with the pediatric liver disease, biliary atresia pre or post transplant. Members will share stories, seek support, ask questions, pray together or just talk. This group is open to all families, friends and medical professionals who care for children with biliary atresia.
Learn More About It
Biliary Atresia
From MEDLINEplus Medical Encyclopedia
Biliary Atresia
Canadian Liver Foundation
Biliary Atresia, Extrahepatic, EHBA from OMIM
Biliary Atresia and Neonatal Hepatitis
Links
Liver Diseases and Treatments- Biliary Atresia
Pediatric Liver Care Center content on Cincinnati Children's Hospital Medical Center
Children's Liver Association for Support Services