Resources- Specific Diagnosis Card Catalog- Bladder Exstrophy
Who to Contact
The Association for Bladder Exstrophy Children (ABC)
PO Box 87954
Fayetteville, NC 28304 USA
866-300-2222 (Toll Free in U.S.)
910-864-4308 (outside U.S)
519-679-8774 (Canada)
914-992-9115 (fax)
E-mail: admin@bladderexstrophy.com
Web: www.bladderexstrophy.com
The Association for the Bladder Exstrophy Community is an international support group network comprising individuals with bladder exstrophy, local parent-exstrophy support groups, and health care providers who work with patients and families living with bladder exstrophy. We collect resources, talent, and information to assist patients and families living with bladder exstrophy to help them master the medical and psychosocial issues relating to exstrophy.
The ABC accomplishes its support function primarily through ABC Update, its quarterly newsletter. ABC Update provides a forum in which issues, questions, and concerns about exstrophy can be discussed. We are also involved in conducting support group meetings across the country to allow for patient and family interaction, guest speakers, and other educational and supportive functions. We endeavor to provide informational resources and emotional support to patients and families living with bladder exstrophy in order to empower them to cope with the psychosocial and medical issues of this problem.
Where to go to Chat with Others?
Learn More About It
Bladder Exstrophy and Epispadias
MedlinePlus Medical Encyclopedia: Bladder Exstrophy Repair
Bladder Exstrophy and Epispadias Factsheet
Bladder Exstrophy - An Explanation for Parents
Links
An Association for Bladder Exstrophy Children
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