Resources- Specific Diagnosis Card Catalog- Carbohydrate-Deficient Glycoprotein Syndrome

Who to Contact

CDG Family Network Foundation
P.O. Box 149
Anamoose, ND 58710
1-903-640-5273
E-mail: cdgaware@aol.com
Web: www.cdgs.com

Support for parents of children diagnosed with congenital disorders of glycosylation, an inherited metabolic disease affecting all body parts, especially the central and peripheral nervous systems. Support is attained primarily online, but forum also provides information and referrals, biannual newsletter, phone support, advocacy. Bulletin board for families to interact with questions, comments and updates.

Where to go to Chat with Others?

CDG List
This list was started for parents and professionals who have children/patients with this condition. Parents of children with CDG or related diseases are invited to share your experiences as well as questions and answers from other families with the same concerns.

Personal Accounts

"Our Stories"

Learn More About It

What is a Congenital Disorder of Glycosylation?

The C D G - Syndrome, what is that?

Carbohydrate-Deficient Glycoprotein Type I; CDG1 information from OMIM

Carbohydrate-Deficient Glycoprotein Type II information from OMIM

Carbohydrate-Deficient Glycoprotein Type III information from OMIM

Carbohydrate-Deficient Glycoprotein Type IV information from OMIM

Links

CDGS Family Network

The CDG Society - Sweden