Resources- Specific Diagnosis Card Catalog- Cornelia de Lange Syndrome

Who to Contact

The Cornelia de Lange Syndrome Foundation, Inc.
302 West Main Street, #100
Avon, CT 06001
860-676-8166
860-676-8337 - Fax
800-223-8355
Web: www.cdlsusa.org/

The Cornelia de Lange Syndrome Foundation is a family support organization which exists to reach out, provide help and offer hope to everyone touched by this genetic condition. Our primary purpose is to offer support on a personal basis and we encourage you to let us know how we can help you and the person in your life with CdLS.

Where to go to Chat with Others?

CDLS- Kids
An e-mail discussion list for parents, caregivers, extended family, and friends of children with CDLS.

CDLS On-line Parent Support Group

Learn More About It

Facts About Cornelia de Lange Syndrome

About CdLS

Cornelia de Lange Syndrome Information from OMIM

Links

Cornelia de Lange Syndrome Foundation Web Site

Cornelia de Lange Syndrome- UK

Cornelia de Lange Syndrome (CdLS)- Online Support Group

Jessica's Place

Amanda's Room

Kayla's (Prink) Web Site