Resources- Specific Diagnosis Card Catalog- Carbohydrate- Cardio-Facio-Cutaneous Syndrome

Who to Contact

Cardio-Facio-Cutaneous Syndrome Support Network
c/o Brenda Conger
183 Brown Road
Vestal, NY 13850
607-772-9666 (phone)
607-748-0409 (fax)
E-mail: bconger@stny.rr.com
Web: www.cfcsyndrome.org

The CFC Family Network is dedicated to parents, family members, and professionals whose interests are connected with children who have Cardio-Facio-Cutaneous (CFC) Syndrome.

This site provides information about CFC Syndrome, who to contact from the CFC Family Network and what we're all about as well as our goals. There are also frequently asked questions about CFC Syndrome, updated news about research and any new services we will provide. There is also a listing of helpful links, photos, and inspirational pieces.

Where to go to Chat with Others?

CFC Network Family Listserv
This is a private listserv for families who have a child with CFC. Contact Brenda Conger for information on how to join at bconger@stny.rr.com

Learn More About It

What is CFC?

Cardio-Facio-Cutaneous Syndrome

Cardio-facio-cutaneous (CFC) syndrome information from OMIM

Cardio-Facio-Cutaneous Syndrome

Links

CFC Family Network