Resources- Specific Diagnosis Card Catalog- Coffin-Lowry Syndrome

Who To Contact

Coffin-Lowry Syndrome Foundation (CLSF)
Mary Hoffman
3045 255th Avenue S.E.
Sammamish, WA 98075
425-427-0939 Call after 5 pm PST or on weekends
E-mail: CLSFoundation@yahoo.com
Web: www.clsf.info

CLSF serves as a clearinghouse for information on CLS and as a general forum for exchanging experiences, advice and information with other CLS families. The Foundation seeks to become a visible group in the medical, scientific, educational and professional communities in order to facilitate referrals of newly diagnosed individuals, and to encourage medical and behavioral research aimed at finding the cause of CLS in order to improve methods of social integration of CLS individuals. CLS has a parent-to-parent matching program and will match families geographically or based on similar concerns such as scoliosis or other health problems.

Where to go to Chat with Others?

CLS Foundation
The purpose of this Group site is to provide families affected by Coffin-Lowry syndrome a forum in which to exchange information, ideas, pictures, anecdotes and advice.

Learn More About It

Frequently Asked Questions About CLS

Coffin Lowry Information Page
From the National Institute of Neurological Disorders and Stroke

Coffin Lowry Syndrome Information
from OMIM

Coffin Lowry Syndrome

Clinical signs of Coffin-Lowry syndrome

Links

Coffin-Lowry Syndrome Foundation