Resources- Specific Diagnosis Card Catalog- Cockayne Syndrome

Who To Contact

Share and Care Cockayne Syndrome Network
P.O. Box 570618
Dallas, TX 75357
'214-728-2679
E-mail: J93082@aol.com
Web: www.cockayne-syndrome.org

This is an international network that was founded in 1981. It offers mutual support and networking for families affected by Cockayne Syndrome (cachectic dwarfism). This includes the sharing of information between families and professionals, maintaining a registry of families, and providing referral information, a newsletter, phone support, and pamphlets (which are available in English, Spanish and Japanese).

Where to go to Chat with Others?

Cockayne Syndrome Chat Room

Learn More About It

Cockayne Syndrome
From Online Mendelian Inheritance in Man (OMIM)

Cockayne Syndrome

Cockayne's Syndrome Handbook

Cockayne's Syndrome
from eMedicine

Links

Share and Care Cockayne Syndrome Network