Resources- Specific Diagnosis Card Catalog- Cri du Chat Syndrome

Who To Contact

5p- Society
PO Box 268
Lakewood, CA 90714-0268
(888) 970-0777
E-mail: fivepminus@aol.com
Web: www.fivepminus.org

The 5p- Society encourages and facilitates communication among families having a child with 5p-Syndrome and spreads awareness and education of the syndrome to these families and their service providers. The society provides parent-to-parent matching by age and geographical location.

The 5p- Society issues a bi-annual newsletter that is free to members. They have brochures, books, and articles available, and collect information on physicians who treat and study the condition and make this information available via family support coordinators.

Cri-Du-Chat Syndrome Support Group
7 Penny Lane
Barwell
Leicestershire LE9 8HJ
United Kingdom
Web: www.cridchat.u-net.com

The Cri-Du-Chat Syndrome Support Group provides support and friendship for families and carers throughout Britain; raises awareness of Cri du Chat Syndrome amongst the medical profession and the public; raises funds to promote research through carefully selected projects; gives information and advice to families and professionals; organises an Annual Conference for professionals, families and other interested parties.

Where to go to Chat with Others?

Chromosome Deletion Outreach
Provides support & information to families affected by any rare chromosome disorder. This group provides parenting support for those with babies and young children.

Learn More About It

Cri du Chat Syndrome
From the On-line Mendalian Inheritance in Man data base.

What is Cri-du-Chat?

MEDLINEplus Medical Encyclopedia: Cri du chat syndrome

Links

Cri-Du-Chat Syndrome Support Group - United Kingdom

Associazione Bambini Cri-du-chat - Italy

5p- Society

Cri-Du-Chat Syndrome
Contact a Family United Kingdom