Resources- Specific Diagnosis Card Catalog- Cystinuria
Also See: Kidney Disorders
Who To Contact
Cystinuria Support Network (CSN)
21001 NE 36th Street
Redmond WA 98053
(206) 868-2996
E-mail: jann@cystinuria.com
Web: www.cystinuria.com
The Cystinuria Support Network is a mutual-aid support network, developed to put individuals with cystinuna in touch with each other for support and practical advice.
CSN provides a list of all participants to new members and include significant data for each participant. Any of the members may be contacted for support or information. CSN publishes a newsletter once or twice a year called Cystinuria Support Network News at no charge. Members can be refered to centers or physicans that specialize in Cystinuria.
Where To Go Chat With Others
Learn More About It
MEDLINEplus Medical Encyclopedia: Cystinuria
From the U.S. National Library of Medicine / National Institutes of Health
Cystinuria information from Ped Base
Links
Cystinurie Support Network France