Resources- Specific Diagnosis Card Catalog- Cystinuria

Also See: Kidney Disorders

  • Who to Contact
  • Where to Go to Chat with Others?
  • Learn More About it
  • Links
  • Who To Contact

    Cystinuria Support Network (CSN)
    21001 NE 36th Street
    Redmond WA 98053
    (206) 868-2996
    E-mail: jann@cystinuria.com
    Web: www.cystinuria.com

    The Cystinuria Support Network is a mutual-aid support network, developed to put individuals with cystinuna in touch with each other for support and practical advice.

    CSN provides a list of all participants to new members and include significant data for each participant. Any of the members may be contacted for support or information. CSN publishes a newsletter once or twice a year called Cystinuria Support Network News at no charge. Members can be refered to centers or physicans that specialize in Cystinuria.

    Where To Go Chat With Others

    Cystinuria Listserv

    Cystinuria.org Forums

    Learn More About It

    MEDLINEplus Medical Encyclopedia: Cystinuria
    From the U.S. National Library of Medicine / National Institutes of Health

    Cystinuria FAQ

    Cystinuria Handbook

    Cystinuria Glossary

    Cystinuria information from Ped Base

    Links

    Cystinuria Support Network

    Cystinuria.Org

    Cystinurie Support Network France

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