Resources- Specific Diagnosis Card Catalog- Cytomegalovirus (CMV)
Who To Contact
The National Congenital CMV Disease Registry
Texas Children's Hospital
Feigin Center, Suite 1150
1102 Bates, MC 3-2371
Houston, Texas 77030-2399
832-824 4387
832-825 4347 (fax)
E-mail: CMV@bcm.tmc.edu
Web: www.bcm.tmc.edu/pedi/infect/cmv/
The National Congenital CMV Disease Registry [NCDR] is a passive surveillance research project and an outreach program that has become a clearinghouse of information about congenital CMV infection. They work toward education of parents and service providers. Additionally, they maintain a parent support network, which is a list of parents from around the country who have agreed to share their name, address, and phone number with other families with children who have CMV.
CMV publishes CMV Updates, bi-annually at no charge, and has other brochures available. They will refer patients to specialists in their area.
Where To Go Chat With Others
Parent to Parent Matching for CMV
Learn More About It
Cytomegalovirus (CMV) Infection
From the National Center for Infectious Diseases
Congenital Cytomegalovirus Infection and Disease
What Everyone Should Know about CMV
History of the Cytomegalovirus
Cytomegalovirus
From eMedicine
Links
The National Congenital CMV Disease Registry
Betaherpesvirinae-Cytomegaloviruses Links
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