Resources- Specific Diagnosis Card Catalog- Deaf-Blind
See Also: Deaf, Blindness, Usher Syndrome
Who To Contact
American Association of the Deaf-Blind (AADB)
814 Thayer Avenue, Suite 302
Silver Springs, Maryland, USA 20910
(TTY Phone: (301) 495-4402
Voice Phone: (301) 495-4403
Fax: (301) 495-4404
Web: www.aadb.org
The American Association of the Deaf-Blind has a mission to assure that a comprehensive, coordinated system of services is accessible to all deaf-blind persons enabling them to achieve their maximum potential through increased independence, productivity and integration into the community. AADB provides basic services to its members such as print-to-braille or braille-to-print transcription of personal papers, shopping services, loan of Braille books, and other necessities.
AADB publishes a quarterly magazine, The Deaf-Blind American, that provides information on new communication technology, education, ideas on mobility, and human interest stories. The association has a lending library of braille materials, and the AADB Resource Directory for which there is a charge. They provide information and referrals to other providers and resources.
DB-LINK National Information Clearinghouse on Children who are Deaf-Blind
345 North Monmouth Avenue
Monmouth, Oregon USA 97361
(800) 438-9376
(800) 854-7013 (TTY)
Web: www.tr.wou.edu/dblink
DB-LINK is a federally funded information and referral service that identifies, coordinates, and disseminates (at no cost) information related to children and youth who are deaf-blind (ages 0 to 21 years). Four organizations have pooled their expertise into a consortium-based clearinghouse.
The purpose of DB-LINK is to ensure that information about practices, programs, and available services are readily accessible to children and youth in the United States, who are deaf-blind and their families and provide information that will assist education, medical, and service personnel in their efforts to deliver comprehensive services nationwide to the approximately 10,000 infants, toddlers, children, and youth who are deaf-blind in the U.S.
Canadian Deafblind and Rubella Association (CDBRA)
c/o W. Ross Macdonald School
350 Brant Avenue
Brantford, Ontario N3T 3J9
Canada
Web: www.cdbra.ca
CDBRA's mission is to assist all deafblind persons and their families in achieving the best quality of life by, developing programs and services to meet their needs, advocating for deafblind persons, facilitating cooperation among agencies, individuals and government, and promoting quality lifelong intervention as a right of all deafblind Canadians. They have local chapter and a directory of these is available. They will provide assistance to individuals who wish to start a support group in their locality.
The Association publishes the newsletter, Intervention, twice a year, which is a benefit of membership. They have brochures that explain the condition and organization, and about intervention. They have a bibliography of articles that are available to members and videos that are for distribution including, "Deafblindness," "Vision in Children," and "Wings." Write for further information to the above address. The Association provides information and referrals to other resources and organizations.
National Family Association for the Deaf-Blind
141 Middle Neck Road
Sands Point, New York USA 11050
(800) 255-0411
(516) 944-8900 (voice)
Web: www.nfadb.org
The National Family Association for Deaf-Blind (NFADB) is a non-profit, volunteer-based family association. Our philosophy is that individuals who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other members of the community. NFADB is the largest national network of families focusing on issues surrounding deaf blindness.
Where To Go Chat With Others
DEAFBLND
The topic of this list is Deaf-Blindness. The purpose of this list is to share information,
inquiries, ideas and opinions on matters pertaining to Deaf-Blindness. This list is open to
professionals, persons who are deaf-blind, and to their families and friends.
Mailing List's And Newsletters For Deafblind People
Learn More About It
Communication Interactions: It Takes Two
The National Information Clearinghouse On Children Who Are Deaf-Blind
Early Interactions With Children Who Are Deaf-Blind
The National Information Clearinghouse On Children Who Are Deaf-Blind
Overview on Deaf-Blindness
The National Information Clearinghouse On Children Who Are Deaf-Blind
Independence Because of Intervention
The Canadian Deafblind and Rubella Association
Links
DB-LINK National Information Clearinghouse on Children who are Deaf-Blind
Canadian Deafblind and Rubella Association (CDBRA)
Deafblind Association Home Page - Australia
Helen Keller National Center for Deaf-Blind Youths & Adults
Royal Institute for Deaf and Blind Children - Australia
National Federation of the Blind Deaf Blind Home Page
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