Resources- Specific Diagnosis Card Catalog- Diabetes Insipidus

Who To Contact

Diabetes Insipidus Foundation, Inc.(DIF)
5203 New Prospect Drive
Ellicott City, MD 21043 USA 410-247-3953 (phone)
410-247-5584 (fax)
E-mail: info@diabetesinsipidus.org
Web: www.diabetesinsipidus.org

This foundation seeks to encompass all four forms of Diabetes Insipidus (DI). These four forms are: (1) Neurogenic, also known as central, hypothalamic, pituitary or neurohypophyseal is caused by deficiency of the antidiuretic hormone, vasopressin; (2) Nephrogenic, also known as vasopressin-resistant is caused by insensitivity of the kidneys to the effect of the antidiuretic hormone, vasopressin; (3) Gestagenic, also known as gestational is also caused by a deficiency of the antidiuretic hormone, vasopressin, that occurs only during pregnancy; and (4) Dipsogenic, a form of primary polydipsia is caused by abnormal thirst and the excessive intake of water or other liquids.

The main goal of The Diabetes Insipidus Foundation, Inc. is improved treatment, and ultimately the prevention and cure of all forms of diabetes insipidus through research. It seeks to promote a greater public awareness and understanding of the disease and will serve patients and their families with informational material and through the quarterly publication of Endless Water. Finally, it seeks to promote Diabetes Insipidus as "A DiFferent Diabetes" so that people will know that there is another diabetes.

Nephrogenic Diabetes Insipidus Foundation (NDIF)
P.O. Box 1390
Eastsound, WA 98245
(888) 376-6343
Fax: (888) 376-3842
E-mail: info@ndif.org
Web: www.ndif.org

This foundation supports education, research, treatment and cure for Nephrogenic Diabetes Insipidus. Its goal is to create a communication channel to serve the entire NDI community: patients and their families, researchers, physicians and other health care providers.

It also provides NDI information pamphlets to health care providers to raise awareness of the symptoms, current diagnosis tools and treatment schemes in order to reduce the possibility of complications arising from delayed recognition and management of the disorder. In addition, it hosts conferences from time to time to review the progress of NDI research and to assess the effectiveness of the foundation's efforts to assist the NDI community.

Where to Go to Chat with Others

Diabetes_Insipidus
A support community for people affected by "Diabetes Insipidus." This group is open to anyone interested in making friends, sharing information and support with others affected by this disorder.

D Insipidus
This is a email list for patient and/or family members of patients diagnosed with Diabetes Insipidus (water diabetes). Whether nephrogenic, central or partial. Whether checking electrolytes, taking DDAVP or growth removal. Whether hereditary, brain trauma or pituitary tumor. All DI related email are welcome. This is not a list for Diabetes Mellitus (sugar diabetes).

Diabetes Insipidus
To provide information and support to professionals and lay people concerning all four forms of Diabetes Insipidus neurogenic (central/pituitary);nephrogenic (vassopressin-resistant); dispogenic; and gestagenic/gestational DI.To promote discussion between the lay and professional communities.

Learn More About It

Diabetes Insipidus
From the American Academy of Family Physicians

Diabetes Insipidus: What is it?
From the Diabetes Insipidus Foundation, Inc, (DIF)

Nephrogenic Diabetes Insipidus
From Diabetes Insipidus and Related Disorders Network (DIARD)

Nephrogenic Diabetes Insipidus (NDI) Facts and Statistics
From the Nephrogenic Diabetes Insipidus Foundation (NDIF)

Frequently Asked Questions about Nephrogenic Diabetes Insipidus

MEDLINEplus Medical Encyclopedia: Diabetes Insipidus

Diabetes Insipidus versus Diabetes Mellitus
From The National Kidney and Urologic Diseases Information Clearinghouse

Links

Diabetes Insipidus and Related Disorders Network (DIARD)

Diabetes Insipidus Foundation, Inc. (DIF)

Nephrogenic Diabetes Insipidus Foundation (NDIF)