Resources- Specific Diagnosis Card Catalog- Down Syndrome
Who to Contact
Canadian Down Syndrome Society
811 14th Street, N.W.
Calgary, Alberta, Canada T2N 2A4
1-800-883-5608 (in Canada)
(403) 270-8500
(403) 270-8291 (fax)
E-mail: dsinfo@cdss.ca
Web: www.cdss.ca
The Canadian Down Syndrome Society (CDSS) is a national, non-profit organization whose mission is to enhance the quality of life for all individuals who have Down syndrome.
The Society accomplishes this mission by providing information and assistance to all those with an interest in Down syndrome, by advocating on behalf of individuals with Down syndrome in the areas of education, employment and healthcare and by providing networking opportunities for parents and professionals in relevant fields.
National Down Syndrome Congress
1370 Center Drive, Suite 102
Atlanta, GA 30338
(800) 232-6372
Web: www.ndsccenter.org
NDSC's purpose is to create a national climate in which all persons will recognize and embrace the value and dignity of persons with Down syndrome. They are committed to promoting the availability of and accessibility to a full range of opportunities and/or recourses that meet individual and family needs, and to educating professionals, parents and the community in all aspects relating to Down syndrome.
NDSC provides support for local groups by sending out a state sheet of area groups/organizations who are affiliates of the NDSC, and sometimes put parent contacts in a section of their newsletter, Down Syndrome News, which is published ten times a year.
A new parent packet is furnished that contains many pamphlets, a medical clinic list, fact sheets, "Welcome To Holland", and other NDSC information. NDSC holds a national conference each year.
National Down Syndrome Society (NDSS)
666 Broadway
New York, New York, USA 10012-2317
(212) 460-9330
(800) 221-4602
Fax: (212) 979-2873
E-mail: info@ndss.org
Web: www.ndss.org
The National Down Syndrome Society's mission is to increase public awareness about and discovering the underlying causes of Down Syndrome through education, research, and advocacy. They provide assistance to families in addressing the needs of children born with this genetic condition. NDSS has local affiliates, a telephone call to their 800 number will give you the location of an affiliate near you. They will provide assistance to individuals who wish to start a support group in their locality.
NDSS publishes a quarterly newsletter, Update, that is free, and a magazine for teens and young adults, News & Views, that is published four time a year for a subscription rate of $10.00 a year. The Society also offers brochures that include under general information, "NDSS Brochure," "This Baby Needs You Even More," and "Inclusion Brochure." They also have brochures under clinical care including, "The Neurology of Down Syndrome," "The Heart and Down Syndrome," and "Speech and Language Skills in Infants, Toddlers and Young Children with Down Syndrome." NDSS has a new parent packet that contains the general information brochures, resources, and the newsletter. They also have a variety of books and videos for distribution or loan, among these are, videos: "Gifts of Love," "Bittersweet Waltz," and "New Parent Video." Books include: "Brothers, Sisters, and Special Needs," and "Babies with Down Syndrome: A New Parents Guide." For a complete listing, order form, and price list, contact The Society at their 800 number.
NDSS Collects information on physicians and researcher who treat/study the condition, they provide referrals to parent support groups as well as local and national resources. The Society hosts a national conference.
Where to Go to Chat with Others
Down Syndrome Email Lists, Newsgroups and Bulletin Boards
Compiled by Dr. Len Leshin
Learn More About It
Down Syndrome: Health Issues
by Len Leshin, M.D.
Welcoming Babies with Down Syndrome
by Pam Wilson
Risk and Recurrence Risk of Down Syndrome
Paul J. Benke, M.D
Love and Learning
Down Syndrome - Teaching Reading and Language
Links
Down Syndrome WWW Page
A compilation of information from the members of the Down Syndrome mailing list. Includes "How to Treat People with Down Syndrome - Tips for Doctors,"
"Welcoming Babies With Down Syndrome" and a medical check list.
Association for Children with Down Syndrome
The home page of an association that offers educational, therapeutic, behavioral and health-related services to persons with Down Syndrome and their families.
The National Down Syndrome Society Web Site
A comprehensive, on-line information source about Down syndrome
Down Syndrome Quarterly
An interdisciplinary journal devoted to advancing the state of knowledge on Down syndrome and will cover all areas of medical, behavioral, and social scientific research.
Disability Solutions
Disability Solutions is the free publication of The Enoch-Gelbard Foundation. It's mission is: "To provide in a widely accessible manner, free of charge, information that is useful, sensitive, and
current to everyone concerned with developmental disabilities: parents, families, self-advocates, and professionals." The goal is to bring current research, medical information, educational strategies, and practical suggestions to our readers in language that is easily understood.
Center for Motor Behavior in Down Syndrome
To conduct and disseminate basic scientific research to better understand the complexity of individuals with Down syndrome and to utilize this knowledge to drive clinical services.
Recommended Down Syndrome Sites on the Internet
Compiled by Dr. Len Leshin, MD, FAAP
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