Resources- Specific Diagnosis Card Catalog- Epilepsy / Seizure Disorders
Also see: Ketogenic Diet Resources
Who to Contact
Epilepsy Foundation of America (EFA)
4351 Garden City Drive
Landover, Maryland, USA 20785-2267
(301) 459-3700
(800) 332-1000
(800) 332-2070 TTY
Fax: (301) 577-4941
Web: www.epilepsyfoundation.org
The Epilepsy Foundation of America's mission is the education, prevention and control of epilepsy and its consequences. They help persons with epilepsy, their families and other individuals overcome the problems associated with this condition. The Foundation has local chapters and will assist persons who wish to start a support group in their locality. They provide parent matching through their family support telephone network, matching support parents with new parents in a similar situation.
EFA publishes a quarterly newsletter, Epigram, for which there is a small fee, and had brochures that explain their programs and services. They offer a new parent packet that contains information on resources, services, and programs. The Foundation maintains a lending library of books, articles, magazines, directories, and videos. They also have books for distribution on family support, and special health care related issues.
EFA collects information on physicians and researchers who treat/study the condition and make this information available through their lending library. They provide referrals to local, state, and national organizations.
Epilepsy Education Association, Inc.
1025 Creekside Ct; Apt C
Mishawaka, Indiana 46544
(219) 273 - 4050 (phone/fax)
Web: http://www.iupui.edu/~epilepsy
The Epilepsy Education Association, Inc. is a not- for-profit corporation dedicated to promoting education about epilepsy. Our programs will be directed to patients and their families, the general public and to physicians.
Where to go to Chat with Others
Epilepsy-L
EPILEPSY-L is an E-mail based support group (discussion list) for people with epilepsy and those who care about and for them. People with epilepsy (PwEs), parents of children with epilepsy, family and friends of PwEs, and health professionals who work with PwEs are all welcome to join.
Epilepsy
For people with or know someone with Epilepsy. A place to talk, share stories, and for moral support. All ages welcome.
Parents-of-kids-with-epilepsy
This Group is for Parents of Children With Epilepsy.
Epilepsy-Kids
Epilepsy-Kids offers support and information for parents of children diagnosed with any form of epilepsy. Discussions include treatment options (AEDs, VNS, surgery, diet, various alternative treatments); medical care issues; therapies such as speech, PT, and OT; school and IEP issues; living with a child with epilepsy; and much more.
Epilepsy_Advocates
We are a group of people that are striving to help make a difference in the lives of people suffering from Epilepsy. Our group is made up of people that suffer from Epilepsy, parents of children with Epilepsy, people whom have previously had Epilepsy and friends of those suffering from Epilepsy.
Learn More About It
Epilepsy - A Brief Introduction
Epilepsy - Frequently Asked Questions
NINDS Epilepsy Information Page
Links
Epilepsy in Young Children Web Page
The Epilepsy Foundation of America Web Site
Washington University Comprehensive Epilepsy Program
Florida Epilepsy Service Providers Organization
International & Non-English Resources
Epilepsy Action - United Kingdom
Associazione Italiana Contro l'Epilessia - Italy
British Epilepsy Association - United Kingdom
Dansk Epilepsiforening - Denmark
Edmonton Epilepsy Association - Canada
EpiNet
Epilepsy Foundation of Victoria, Australia
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