Resources- Specific Diagnosis Card Catalog- Brachial Plexus / Erb's Palsy

Who to Contact

National Brachial Plexus / Erb's Palsy Association, Inc (BPI)
P.O. Box 23
Larsen, WI 54947
(920) 836-9955
E-Mail: erbspalsy@usa.net
Web: www.nbpepa.org

This association's mission is to provide support, promote public awareness, serve as a resource to families and professionals, and provide a network of information to increase the understanding of Brachial Plexus injuries and discover new and better ways to treat children with the injury. They have support groups with a directory available. They will provide assistance to individuals who wish to start a support group in their locality. The Network provides parent-to-parent matching through their database of families. They are matched by location or severeness of injury.

This association publishes a biannual newsletter, Outreach, at no cost to members and a brochure, "What is Brachial Plexus Injury?" It offers a new parent packet that is available for a postage and handling fee. It also collects information on physicians and researchers who treat/study the condition and disseminates this information to its members. Finally, it provides referrals to physicians and care providers who practice in this particular field.

Brachial Plexus Palsy Foundation (BPPF)
210 Spring Haven Circle
Royersford, PA 19468
Web: membrane.com/bpp/

This is a non-profit organization designed to raise funds for activities in support of families with children who have suffered brachial plexus injuries. It also provides information about a brachial plexus injury to better educate families who do not have the time or resources. This organization is also the leading financial contributor to a national newsletter, called OUTREACH, which is published twice per year. OUTREACH is devoted exclusively to brachial plexus injuries. It is produced in Northern California and sent to over 1000 families and medical professionals across the globe. It provides up to date materials and information relative to treatment, networking, and fundraising. It is a valuable resource for parents and the medical community. The BPPF has and will continue to provide funds, for medical facilities that conduct research and studies in search of a cure, and to better treat brachial plexus injuries in children and adults. In order to move forward in these endeavors, the BPPF schedules two major fundraising efforts per year. In the spring, we have a yard sale with contributions form over 30 families in the area, and in the fall we hold a golf tournament.

United Brachial Plexus Network
1610 Kent St.
Kent, OH 44240
866-877-7004
E-Mail: info@ubpn.org
Web: www.ubpn.org/

This is a non-profit organization that was created to offer support for families and individuals affected by the Brachial Plexus injury, Erbs Palsy. It is dedicated to providing information and resources through the internet as well as through the mailing of our newsletters and information packets.

Where to go to Chat with Others?

Brachial Plexus / Erb's Palsy Networking Forum

Erb's Palsy Information and Resource Group Web Board

Learn More About It

Brachial Plexus Injuries Information Page
From the National Institute of Neurological Disorders and Stroke

Erb's Palsy (Brachial Plexus Injury)
From the American Society for Surgery of the Hand

Brachial Plexus Injury Information for New Parents
From the United Brachial Plexus Network

Brachial Plexus Injury / Erb's Palsy
From Pediatric Neurosurgery at the Texas Children's Hospital

Brachial Plexus Palsy
From the Beth Israel Medical Center

Brachial Plexus Protocol

Links

Brachial Plexus Palsy Foundation

Erb's Palsy Information and Resource Group (EPIRG)