Resources- Specific Diagnosis Card Catalog- Fanconi Anemia

Who to Contact

Fanconi Anemia Research Fund, Inc. [FARF]
1801 Willamette Street, Suite 200
Eugene, Oregon, USA, 97401
800-828-4891
541-687-4658
541-687-0548 (fax)
E-mail: info@fanconi.org
Web: www.fanconi.org

The Fanconi Amenia Research Fund raises money for research which can lead to discovery of defective genes and the development of treatments or a cure. They also mantain a growing communication support network of parents and adults with Fanconi Anemia. FARF supports the development of life-saving gene transfer therapies, and sponsers and conducts scientific symposia. They distribute support materials for affected families and their physicians.

The Fund develops and maintains a growing communication support network, here parents and clinicians receive research updates, families may find expert care, cell lines are submitted for research, and parents locate others in their area for support or to develop joint fundraising projects.

The FA Handbook, the FA Family Newsletter, Scientific Supplement, and Bulletin all provide up-to-date education and links to latest research findings. The Fund maintains a family directory by alphabetical and geographical lists and refers families to each other according to similiar needs or age groups.

Where to go to Chat with Others?

Fanconi Anemia Families Discussion List

Personal Accounts

Hope for Henry

Learn More About It

What Is Fanconi Anemia And How Is It Diagnosed?

Fanconi Anemia Information
from OMIM

Dealing with FA

Links

Fanconi Anemia Research Fund, Inc. Home Page

Fanconi Anaemia - UK

Fanconi Canada

The Fanconi Anemia Comprehensive Care Center
Cincinnati Children's Hospital Medical Center

FA Families
This is a place for all family's with Fanconi Anemia to gather and share whatever it is they might like to share with others.