Resources- Specific Diagnosis Card Catalog- Freeman-Sheldon Syndrome

Who to Contact

Freeman-Sheldon Parent Support Group
509 East Northmont Way
Salt Lake City, Utah 84103-3324
(801) 364-7060
E-mail: fspsg@mail.burgoyne.com
Web: http://www.fspsg.org/

The Freeman-Sheldon Parent Support Group (FSPSG) is an international self-help organization for individuals and families touched by Freeman-Sheldon syndrome. FSPSG is a volunteer organization founded in 1982. Our mission is to advance the understanding of Freeman-Sheldon syndrome through research and facilitate the care affected individuals through referral, mutual self-help, and advocacy. We are an informational resource for affected individuals, healthcare providers, educators, and the general public.

Where to go to Chat with Others?

Freeman-Sheldon Syndrome
This is an open forum support eGroup for anyone interested in sharing information and/or support for persons affected by "Freeman-Sheldon Syndrome." Affected persons, family members, friends, medical professionals and rare disease researchers are all encouraged to join this forum.

FSS
A place for people worldwide who are afflicted with, have loved ones who are or are interested in Freeman Sheldon Syndrome to communicate with each other.

Learn More About It

What is Freeman-Sheldon Syndrome?

Freeman-Sheldon Syndrome Information

FSS - Contact a Family
United Kingdom

Freeman Sheldon Information
from OMIM

Whistling Face Syndrome - Recessive Type

Links

Freeman Sheldon Parent Support Group Web Site