Resources- Specific Diagnosis Card Catalog- Galactosemia
Who to Contact
Parents of Galactosemic Children
885 Del Sol Street
Sparks, NV 89436
775-626-0885
E-mail: mesameadow@aol.com
Web: www.galactosemia.org
Parents of Galactosemic Children, Inc is a non-profit, national organization. Founded in February 1975 by a small group of mothers in New York, PGC realizes the need for further information and networking between affected families and professionals. Metabolic Clinics across the nation continue to assist PGC in researching families and information. Today our mailing list includes over 1000 families and extended families, professionals and clinics, media groups, donors, and Canadian and overseas contacts. Objectives and functions are achieved on an all-volunteer basis.
Where to go to Chat with Others
Liver Children
Children's Liver Alliance List FOR FAMILIES Dedicated to empowering the hearts and minds of children with liver disease, their families and the medical
professionals who care for them. Open to all families, friends and medical professionals who have an interest in pediatric liver disease and transplantation. Diseases
include Alagille's Syndrome, Alpha-1 Antitrypsin Deficiency, Biliary Atresia, Crigler-Najjar, Cystic Fibrosis (liver affected), Galactosemia, Glycogen Storage Diseases, Hepatitis,
Tyrosinemia, Wilson's Disease, Primary Sclerosing Cholangitis, and any other PEDIATRIC liver disease.
Learn More About It
Galactosemia Handbook: A Parents Guide
Galactosemia Frequently Asked Questions
Links
Parents of Galactosemic Children
Galactosemia Resources and Information
European Galactosaemia Society
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