Resources- Specific Diagnosis Card Catalog- Rare Genetic Diseases

Who to Contact

Genetic Alliance
4301 Connecticut Ave, NW
Suite 404
Washington, DC 20008-2304
800-336-GENE
202-966-5557
FAX: 202-966-8553
E-Mail: info@geneticalliance.org
Web: http://www.geneticalliance.org/

The Genetic Alliance is an international coalition comprised of millions of individuals with genetic conditions and more than 600 advocacy, research and health care organizations that represent their interests. As a broad-based coalition of key stakeholders, the Alliance builds partnerships to promote healthy lives for all those living with genetic conditions. Our guiding principles are a dynamic statement of the mission and vision that infuse all Alliance endeavors. The Alliance identifies solutions to emerging problems and endeavors to reduce obstacles to rapid and effective translation of research into accessible technologies and services.

Where to go to Chat with Others?

Family Village Parent-to-Parent Web Board

Contact a Family
An organization in the United Kingdom committed to "helping families who care for children with any disability or special need.

Links

Canadian Directory of Genetic Support Groups

Eurordis - European Organization for Rare Diseases

Genetic Alliance

Genetic Centers, Clinics, and Departments

Guide to Genetics Databases

International Rare Disease Support Network (IRDSN)

National Organization for Rare Disorders - NORD

Neonatal Diseases and Abnormalities

National Newborn Screening and Genetics Resource Center

National Society of Genetic Counselors

Office of Rare Diseases - NIH

World of Genetics Societies on the Web

Genetic Information and Patient Services, Inc (GAPS)
A non-profit 501(c)(3) charity providing free information to the public on genetic disorders