Resources- Specific Diagnosis Card Catalog- Goldenhar Syndrome

Who to Contact

Goldenhar Syndrome Support Network Society
9325 163 Street
Edmonton, Alberta
T5R 2P4; Canada
E-mail: support@goldenharsyndrome.org
Web: www.goldenharsyndrome.org

Our goal is to provide Support and Information to families and individuals involved with Goldenhar Syndrome and its many related conditions.

Where to go to Chat with Others

Goldenhar Syndrome
Our goal is to provide support and information to families and individuals affected by Goldenhar Syndrome, its related conditions.

Goldenhar Adults
This list is in conjunction with goldenharsyndrome@yahoogroups.com and is set up to give the adult and teens with Goldenhar Syndrome and related conditions a place to talk to others who are or have gone through the same things that they have. (Parents of children with GS please join goldenharsyndrome-subscribe@yahoogroups.com)

Learn More About It

Goldenhar Frequently Asked Questions

What is Goldenhar Syndrome?
From the World Craniofacial Foundation

Goldenhar Syndrome
From the National Craniofacial Association

Goldenhar Syndrome Information
from OMIM

Goldenhar Syndrome with Ipsilateral Radial Defect Information
from OMIM

Links

The Goldenhar Syndrome Support Network

Goldenhar Support Group - UK
From Contact a Family