Resources- Specific Diagnosis Card Catalog- Granulomatous Disease
Who to Contact
Chronic Granulomatous Disease Association, Inc.
c/o Alan & Mary Hurley
2616 Monterey Road
San Marino, California, USA, 91108
(626) 441-4118
E-mail: cgda@socal.rr.com
Web: www.cgdassociation.org
CGD provides support and research fo CGD patients families, and physicians and organizations who come in contact with CGD. They have brochures available and provide parent matching by geographical area / ages / illness. CGD publishes a bi-annual newsletter, Chronic Granulomatous Disease Association, and provides referrals to NORD, Immune Deficiency Foundation.
Where to go to Chat with Others
CGD Family
This group is for patients and family members of patients who have Chronic Granulomatous Disease (CGD), a rare immune deficiency where people are born with impaired white cells causing bacterial and fungal infections that can be fatal. This group is solely for the purpose of sharing CGD related problems and possible medical solutions in an effort to give support to those who are suffering.
Learn More About It
Chronic Granulomatous Disease Research Advances
A Guide for CGD Patients and their Families
Granulomatous Disease Information
from OMIM
Atlas of Granulomatous Diseases
Links
Chronic Granulomatous Disease Association
The Chronic Granulomatous Disorder (CGD) Research Trust - UK