Resources- Specific Diagnosis Card Catalog- Growth Disorders

Who to Contact

Human Growth Foundation (HGF)
997 Glen Cove Avenue
Glen Head, N.Y. 11545
800-451-6434 (phone)
516-671-4055 (fax)
E-mail: hgf1@hgfound.org
Web: http://hgfound.org/

This foundation helps individuals with growth-related disorders, their families, and health care professionals through education, research, and advocacy.

HGF has available reading material for growth-related disorders, there is a nominal charge for more than one of each item. It also has a list of books that may be purchased. It publishes a monthly newsletter and collects information on physicians and research that is accessible to members.

Little People's Research Fund, Inc. (LPRF)
616 Old Edmondson Avenue
Catonsville, MD 21228
410-747-1100 (phone)
410-747-1374 (fax)
800-232-LPRF (toll-free)
Web: www.lprf.org

This organization supports research into the disabling conditions of skeletal dysplasia (dwarfism), promotes patient care, and education of the medical community, as well as the general public. It assists families by sponsoring clinics in various states in which patients receive free consultation, examination, and follow-up attention. LPRF funds research on the orthopaedic disabilities associated with dwarfism , provides funds for direct patient care/services, educates the public about the difficulties faced by Little People, sponsors clinics and where possible, assists financially with braces and other prosthesis.

MAGIC Foundation for Children's Growth
6645 W. North Ave.
Oak Park, IL 60302
708-383-0808 (phone)
708-383-0899 (fax)
(800) 3 MAGIC 3
E-mail: mary@magicfoundation.org
Web: www.magicfoundation.org

MAGIC Foundation is dedicated to helping children whose physical growth is affected by a medical problem, by assisting families of afflicted children through local support groups, public education/awareness, newsletters, specialty divisions, and programs for the children (pen pals/newsletters/birthday club).

MAGIC publishes a quarterly newsletter The Magic Touch that is free with membership or in case of financial need membership is free. The children produce a newsletter of their own called The Magic Kids. There are also pamphlets and brochures available and a video "Just say yes to Growth Hormone". Finally, MAGIC supports local groups and provides parent-to-parent matching through networking forms that connect families with the same disorder.

Where to Go to Chat with Others

Growth Hormone Deficiency
This is an International Rare Disease Support Network (IRDSN) eGroup open for anyone interested in making friends, sharing information and providing support for persons affected by 'Growth Hormone Deficiency.'

MAGIC List - To support parents of children with growth hormone disorders
We are the parents of children with growth hormone disorders. This group is here for support, encouragement, and advice on the issues associated with raising children on Growth Hormone Therapy.

GHD kids now adults
Growth Hormone Deficient Adults who want to talk

Learn More About It

Underlying Conditions of Growth Abnormalities
From the MAGIC Foundation

Growth Related Disorders
From the Human Growth Foundation

What Is a Growth Disorder?

MEDLINEplus: Growth Disorders

Achondroplasia
From Online Mendelian Inheritance in Man (OMIM)

Cartilage-Hair Hypoplasia
From Online Mendelian Inheritance in Man (OMIM)

McCune-Albright Syndrome
From Online Mendelian Inheritance in Man (OMIM)

Pituitary Dwarfism I
From Online Mendelian Inheritance in Man (OMIM)

Russel-Silver Syndrome
From Online Mendelian Inheritance in Man (OMIM)

Russel-Silver Syndrome (X-Linked)
From Online Mendelian Inheritance in Man (OMIM)

Links

MAGIC Foundation for Children's Growth

The Kid's Growth Hormone Deficiency Homepage

Human Growth Foundation (HGF)

Restricted Growth Association - UK