Resources- Specific Diagnosis Card Catalog- Hemochromatosis

Who to Contact

American Hemochromatosis Society Inc.
4044 West Lake Mary Boulevard
Unit #104, PMB 416
Lake Mary, FL 32746-2012
1-888-655-4766 (toll free hotline)
407-829-4488 (phone)
407-333-1284 (fax)
E-mail: mail@americanhs.org
Web: http://www.americanhs.org/

The mission of the American Hemochromatosis Society (AHS) is to educate and support the victims of HFE-associated hereditary hemochromatosis (genetic iron overload) and their families as well as educate the medical community on the latest research on Hereditary Hemochromatosis (HH). AHS' aim is to identify through genetic testing, the 43 million+ Americans who unknowingly carrying the single or double gene mutations for HH which puts them at risk for loading excess iron.

AHS recognizes and envisions that it is possible now and in the future to prevent needless deaths, disability, organ damage, very costly joint replacements, chemoembolization and surgery for liver cancer, and organ transplants caused by hereditary hemochromatosis/iron overload through routine/universal screening for HH of the American public, DNA newborn genetic screening for HH for all children in America, and establishment of universal guidelines for diagnosis and treatment for HH in minor children and adults

Iron Overload Diseases Association
433 Westwind Drive
North Palm Beach, Florida 33408-5123
561-840-8512
561-842-9881 (fax)
E-mail: iod@ironoverload.org
Web: www.ironoverload.org

The Iron Overload Diseases Association has a mission to lead the search for millions of Americans and other nationals who have undiagnosed hemochromatosis (iron overload) and to prevent the resulting severe health problems and avoidable deaths.

The Association also supports on-line discussion groups, moderated by experts in the field.

Iron Disorders Institute Inc.
P.O. Box 2031
Greenville, South Carolina 29602
888-565-4766 (toll-free)
864-292-1175 (phone)
864-292-1878 (fax)
E-mail: comments@irondisorders.org
Web: www.irondisorders.org

Iron Disorders Institute is a non-profit, common ground resource center. It provides information about iron-related disorders and disease that has been reviewed by physicians, researchers and scientists expert in the following: hemochromatosis, acquired iron overload, juvenile hemochromatosis, African siderosis, thalassemia, porphyria cutanea tarda, sideroblastic anemia, iron-deficiency anemia, and anemia of chronic disease.

Where to go to Chat with Others

Iron Overload
This is a forum for all areas concerning hereditary hemochromatosis/iron overload.

FHHF
Hereditary Hemochromatosis Support Group

Learn More About It

16 Facts You Should Know About Hemochromatosis
From the Iron Overload Diseases Association

Hemochromatosis
National Institute of Diabetes and Digestive and Kidney Diseases

What You Don't Know About Iron Can Kill You
From the Hemochromatosis Foundation

Links

American Hemochromatosis Society

The Hemochromatosis Foundation

Iron Overload Diseases Association

Iron Disorders Institute Inc.