Resources- Specific Diagnosis Card Catalog- Hemophilia
Who to Contact
National Hemophilia Foundation (NHF)
116 West 32nd Street, 11th Floor
New York, NY 10001
800-424-2634 (toll-free)
212-431-0906 (fax)
Web: www.hemophilia.org
NHF publishes a monthly newsletter, Community Alert, at no charge, and has numerous brochures that are free if you are requesting one copy. They also provide a new parent packet for parents of newly diagnosed children. The Foundation has a library of journals, books and articles relating to bleeding disorders/HIV that are free to members.
NHF collects information on physicians and researcher who treat/study the condition and disseminates the research information to its members. They operate a toll-free information line that provides referrals and information. They host a national conference, call for further information.
Iron Overload Diseases Association
433 Westwind Drive
North Palm Beach, Florida 33408-5123
561-840-8512
561-842-9881 (fax)
E-mail: iod@ironoverload.org
Web: http://www.ironoverload.org/
The Iron Overload Diseases Association has a mission to lead the search for millions of Americans and other nationals who have undiagnosed hemochromatosis (iron overload) and to prevent the resulting severe health problems and avoidable deaths.
The Association also supports on-line discussion groups, moderated by experts in the field.
World Federation of Hemophilia
1425 René Lévesque Blvd. W. Suite 1010
Montréal, Québec, H3G 1T7 Canada
514-875-7944 (phone)
514-875-8916 (fax)
E-mail: wfh@wfh.org
Web: www.wfh.org
The World Federation of Hemophilia is an international not-for-profit organization dedicated to introducing, improving, and maintaining care for people with hemophilia and related bleeding disorders around the world. The WFH focuses its activities in the following areas:
Through our network of committed volunteers and associated stakeholders, the World Federation of Hemophilia acts as a catalyst to bring about needed change. To this effect, the WFH works with national hemophilia organizations, health care providers, and government officials to foster quality health care for people with bleeding disorders.
Where to go to Chat with Others
Hemophilia
International Hemophilia Club
Parents People Hemophilia
This is a club for everyone dealing with bleeding disorders.
Bleeding-Disorders
This list is for Parents of Children with Bleeding disorders, such as Hemophilia & VWD, to share information, thoughts, and support for each other.
Factor 9
Hemophilia B discussion list
Learn More About It
What You Should Know About Bleeding Disorders
Links
National Hemophilia Foundation
The Coalition for Hemophilia B
Bleeding Disorders Web — Von Willebrand Disease
World Federation of Hemophilia (Haemophilia)
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