Resources- Specific Diagnosis Card Catalog- Holoprosencephaly

Who to Contact

Carter Centers for Research in Holoprosencephaly
c/o Texas Scottish Rite Hospital
P.O. Box 190567
2222 Welborn Street
Dallas, TX 75219-9982
Tel: 214-559-8411
Fax: 214-559-7835
E-mail: hpe@tsrh.org
Web: www.stanford.edu

The goal of the Carter Centers is to evaluate and treat as many patients afflicted with HPE and their families as possible in order to improve lives and conquer this disorder. The Carter Centers plan to attain this goal by supporting research and educational efforts and encouraging collaboration among investigators in the fields of neurology, genetics, and related disciplines.

Where to go to Chat with Others

Holoprosencephaly
This list is intended as a support group for parents and famlies of children with Holoprosencephaly.

Holoprosencephaly Loss Support
This group is designed for support of the parents/grandparents etc. that have lost a child to holoprosencephaly.

Learn More About It

Holoprosencephaly Information
from OMIM

Information About Holoprosencephaly

Human Chromosome 7 Workshop

Holoprosencephaly Information Sheet
From the National Institutes of Health

Teaching Files: Holoprosencephaly
From Neonatology on the Web

Links

The Independent Holoprosencephaly Support Page

The Carter Centers for Brain Research in Holoprosencephaly and Related Malformations

Chromosome 7 Project