Resources- Specific Diagnosis Card Catalog- Hereditary Hemorrhagic Telangiectasia

Who to Contact

HHT Foundation International, Inc
P.O. Box 329
Monkton, MD 21111
1-800-448-6389 (toll-free)
410-357-9932 (phone)
410-357-9931 (fax)
E-mail: hhtinfo@hht.org
Web: www.hht.org

Related Conditions: Osler-Weber-Rendu syndrome

The HHT Foundation was formed in 1990 to aid and support persons with Hereditary Hemorrhagic Telangiectasia (HHT) also known as Osler-Weber-Rendu Syndrome; to provide patients, families and doctors with educational information; to foster an exchange of information about the diagnosis and treatment of HHT between patients, physicians, researchers, genetic counselors, charitable organizations, government agencies, industry, academic institutions and the general public; to raise funds for genetic and clinical research and for sponsoring special scholarships for studies pertaining to HHT.

HHT Foundation International is a worldwide, non-profit organization whose purpose is to support patients and families and educate medical professionals. This site is dedicated to the individuals and medical professionals who encounter the daily challenges of managing Hereditary Hemorrhagic Telangiectasia (HHT) also known as Osler-Weber-Rendu Syndrome. HHT is a genetic disorder, which affects blood vessels. This disorder is worldwide affecting males and females of all races and ethnic groups. Up to 1/3 of HHT patients can have multiple organ involvement, which can be disabling and or life threatening. HHT can be treated successfully if correctly diagnosed.

Where to go to Chat with Others

Rediscovering Hope within HHT
This Community is dedicated to all who suffer with Hereditary Hemorrhagic Telangiectasia, a genetic disorder that manifests itself in so many ways. Here, you will find Links to HHT and related web sites, information on the latest research, as well as a place to meet people who, like you, battle this disorder.

Learn More About It

What is Hereditary Hemorrhagic Telangiectasia?

Hereditary Hemorrhagic Telangiectasia (Osler-Weber-Rendu syndrome)

Hereditary Hemorrhagic Telangiectasis Information
from OMIM

Liver Disease in Patients with Hereditary Hemorrhagic Telangiectasia

Links

HHT Foundation International Web Site