Resources- Specific Diagnosis Card Catalog- Hydrocephalus

Who to Contact

Hydrocephalus Association
870 Market Street, Suite 705
San Francisco, California, USA 94102
(415) 732-7040
Fax: (415) 732-7044
E-mail: info@hydroassoc.org
Web: http://www.hydroassoc.org/

The Hydrocephalus Association provides support, education, and advocacy for families and professionals. It works to insure that families and individuals dealing with the complexities of hydrocephalus receive personal support, comprehensive educational materials, and on-going medical care.

Hydrocephalus Foundation, Inc. (HyFI)
910 Rear Broadway
Saugus, Massachusetts 01906
(781) 942-1161
E-mail: HyFII@netscape.net
Web: http://www.hydrocephalus.org/

The Hydrocephalus Foundation is a non-profit organization dedicated to providing support, educational resources and networking opportunities to patients and families affected by hydrocephalus. The Foundation also promotes related research and facilitates the training of healthcare professionals to improve patient outcomes.

Guardians of Hydrocephalus Research Foundation
2618 Ave. Z
Brooklyn, New York, 11235
718-743-4473
1-800-458-8655 (toll-free)
718-743-1171 (fax)
E-mail: ghrf2618@aol.com
Web: http://ghrf.homestead.com

Guardians is a non-profit organization made up of concerned parents and dedicated volunteers.The goal of this foundation is to wipe out this top ranking birth defect. Our efforts are also directed into disseminating infomation to the general public so that a better uderstanding of Hydrocephalus will be established,and to support research into finding the causes,cure and prevention of Hydrocephalus.

National Hydrocephalus Foundation
12413 Centralia Road
Lakewood, California, 90715-1623
1-888-857-3434 (toll-free)
562-402-3523
562-924-6666 (fax)
E-mail: hydrobrat@earthlink.net
Web: www.nhfonline.org

The National Hydrocephalus Foundation is a national not-for-profit voluntary organization dedicated to providing information and support to families of individuals affected by Hydrocephalus. The Foudnation is also committed to funding and promoting medical research on Hydrocephalus and enabling affected families to exchange information, resources, and support.

Where to go to Chat with Others

Life with Hydrocephalus
Our mission is to support one another as we all deal with the different aspects of hydrocephalus. This club is not only open to individuals and family members but also to friends and family of people who deal with hydrocephalus.

HydroParents
This is an email group for people with hydrocephalus, their friends and family members, health care professionals and anyone else with an interest in the condition. The purpose of the list is to share information and support in dealing with hydrocephalus.

Hydrocephalus
This is an open forum for those families and medical professionals interested in sharing information and support for those affected by Hydrocephalus.

HYCEPH-L email discussion group
An information and support forum for hydrocephalus

Learn More About It

Childhood Hydrocephalus: Clinical Features, Treatment, and the Slit-Ventricle Syndrome
From Arno H. Fried, M.D., Mel H. Epstein, M.D.

Cysternography in Normal Pressure Hydrocephalus: A Case Study.
From Gabriel Soudry, M.D., Charles Ahn M.D.

Hydrocephalus
From the Department of Pediatric Neurosurgery at the Institute for Neurology and Neurosurgery

Hydrocephalus
From the Pediatric Neurosurgery Unit at the Columbia-Presbyterian Medical Center

Hydrocephalus Fact Sheet
National Institute of Neurological Disorders and Stroke

Hydrocephalus Information and Links
MedLine Plus

Hydrocephalus FAQ
Madi's Fund for Hydrocephalus & Associated Neurosurgical Research

Links

Hydrocephalus Association

Hydrocephalus Foundation, Inc. (HyFI)

Guardians of Hydrocephalus Research Foundation

National Hydrocephalus Foundation

Hydrocephalus Support Group of Central New Jersey -- New Jersey

Living with Hydrocephalus

Maternal Hydrocephalus

Steve's Hydrocephalus Homepage