Resources- Specific Diagnosis Card Catalog- Hypohidrotic Ectodermal Dysplasia

Who to Contact

Sarah Moody Foundation (formerly known as the HED Foundation)
P.O. Box 9421
Hampton, Virginia 23670-0421
757-329-3007
E-mail: kim@hedfoundation.org
Web: http://www.hedfoundation.org/

The mission of the Sarah Moody Foundation is to improve the quality of life for children suffering from Sarah Moody Foundation and related disorders that affect the body's ability to cool itself. One of the most important ways in which the Sarah Moody Foundation enhances the quality of life is through the distribution of personal cooling systems, most commonly the KoolVest ®.

Where to go to Chat with Others

Ectodermaldysplasia
Support for people and families affected by the various forms of ectodermal dysplasia, including Hypohidrotic Ectodermal Dysplasia

Learn More About It

Rapp-Hodkins Syndrome

Hypohidrotic Ectodermal Dysplasia with Hypothyroidism and Agenesis of the Corpus Callosum
From Online Mendelian Inheritance of Man (OMIM)

Hypohidrotic Ectodermal Dysplasia with Hypothyroidism and Ciliary Dyskinesia
From Online Mendelian Inheritance of Man (OMIM)

Links

HED Foundation and Related Disorders: CoolVests

Sarah Moody Foundation