Resources- Specific Diagnosis Card Catalog- Ichthyosis
Who to Contact
F.I.R.S.T. - The Foundation for Ichthyosis and Related Skin Types
650 N. Cannon Avenue, Suite 17
Lansdale, PA 19446
215-631-1411 (phone)
215-631-1413 (fax)
E-mail: info@scalyskin.org
Web: http://www.scalyskin.org/
Our mission is devoted to helping individuals and families with the genetic diseases collectively called the ichthyoses. We are comprised of many dedicated, caring volunteers who want to better the lives of people affected by ichthyosis. Our mission is accomplished in many ways. By offering information and education to both lay and professional communities, advocating on behalf of our members in the political and healthcare arenas and serving as a 'bridge' between the ichthyosis community and the medical profession. The Foundation continues to be an important resource for individuals and families affected by ichthyosis.
The Foundation's Publications Center produces and distributes reliable information for those affected by ichthyosis. A listing of the booklets and resources available for purchase is available by clicking "The Kiosk" on the menu listing on the left. Our quarterly newsletter, Ichthyosis Focus, is devoted exclusively to the special interests and needs of the ichthyosis community. The Ichthyosis Support Network (ISN), national and regional conferences provide an effective way for our members to identify and interact with one another. The Foundation's Research Program supports biomedical research into a cure for ichthyosis, new effective treatments, young investigators and fresh ideas.
Where to go to Chat with Others?
Learn More About It
Ichthyosis Frequently Asked Questions
Ichthyosis Vulgaris, Hereditary and Acquired
Links
F.I.R.S.T. - The Foundation for Ichthyosis and Related Skin Types
The National Registry for Ichthyosis and Related Disorders
Ichthyosis Support Group
United Kingdom
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