Resources- Specific Diagnosis Card Catalog- Immune Disorders
Who to Contact
Immune Deficiency Foundation (IDF)
25 W Chesapeake Ave., Suite 206
Towson, Maryland, USA 21204
(410) 321-6647
(800) 296-4433
Fax: (410) 321-9165
Web: www.primaryimmune.org
The Immune Deficiency Foundation's mission is to directly help children and adults with Immune Deficiency, fund medical research, provide information, support, and education to the parents of children with IDF, patients, and health care professionals.
The Foundation has local support groups with a directory available through their newsletter. They provide assistance to individuals who wish to start a support group in their locality. They provide parent-to-parent matching through their local chapters. IDF publishes a quarterly newsletter, IDF National Newsletter, at no cost to members, and have brochures that contain general information about the condition and the organization. They also have a patient sample packet that they send to new parents and others who have an interest in the condition.
The Foundation has a bibliography of books and articles that are free to members, and books, videos and slide sets that are available for purchase. Included in these are a video, "Will We Ever Smile Again?" booklets, "Our Immune System," a colorfully illustrated booklet for children, in English and Spanish, and "The IDF Patient and Family Handbook." Telephone or write to the above address and 800 number for further information and price list.
IDF collects information on physicians and researchers who treat or study this condition and disseminates this information to its members through the newsletter. They provide information and referrals to other resources upon request. Additionally, the Foundation hosts an annual meeting, call for further information.
Where to go to Caht with Others?
PedPID (Pediatric Primary Immune Deficiency) e-mail list
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Links
Immune Deficiency Foundation Web Site
IPOPI - International Patient Organisation for Primary Immunodeficiencies
National Jewish Center for Immunology and Respiratory Medicine
The American Association of Immunologists Home Page
The HLA Registry Foundation, Inc.
Pediatric Primary Immune Deficiency Page
Primary Immunodeficiency Association
United Kingdom
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