Resources- Specific Diagnosis Card Catalog- Intestinal Pseudo-Obstruction
Who to Contact
International Foundation for Functional Gastrointestinal Disorders - IFFGD
PO Box 170864
Milwaukee, WI 53217-8076
Phone: 414-964-1799
Fax: 414-964-7176
E-mail: iffgd@iffgd.org
Web: http://www.iffgd.org/
IFFGD is a nonprofit education and research organization. Our mission is to inform, assist, and support people affected by gastrointestinal (GI) disorders. We address issues of digestive health in children through support of education and research. We promote awareness-among the public, health care providers, researchers, and regulators-of conditions such as:
We strive to provide a link between clinical research and patient care so that advancements concerning GI health result in improvements in the quality of life for those affected. IFFGD offers a community of support for the children and families affected by gastrointestinal disorders.
Where to go to Chat with Others?
GI Young Adults
This list is for teens and young adults with gastrointestinal motility disorders, such as chronic intestinal pseudo-obstruction (CIP). It is also open for young people who are on TPN, g-tube, or j-tube feedings. This is a place where you will be among other young people who have similar issues such as dating, dealing with school and peer issues, communicating with doctors on your own, and becoming independent while living with a GI disorder. This list is also open to teenagers and young adults.
Delayed Gastric Empty
This group is for people with Delayed Gastric Emptying, gastroparesis, pseudo-obstruction, and other GI and motility dysfunctions as well as parents of children with these illnesses. It is my hope to share information and to support one another with these often misunderstood diseases and conditions.
Guardian Society
The Hirschsprung's & Motility Disorders Support Network,The Guardian Society are a group of people whose kids suffer from various motility disorders such as Hirschsprung's Disease, Neuronal Intestinal Dysplasia, Intestinal Pseudo-Obstruction, GERD, Short Bowel Syndrome, and the like.
Learn More About It
Gastrointestinal Disorders in Children
Intestinal Pseudo-Obstruction
Developed at the Centre for Medical and Surgical Gastroenterology and Hepatology
Intestinal Pseudo-Obstruction due to Neuronal Disease
From the Online Mendelian Inheritance of Man (OMIM)
Intestinal Pseudo-Obstruction, Neuronal, Chronic Idiopathic, X-Linked
From the Online Mendelian Inheritance of Man (OMIM)
Links
International Foundation for Functional Gastrointestinal Disorders
Hirschsprungs's & Motility Support Network - UK
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