Resources- Specific Diagnosis Card Catalog- Klinefelter Syndrome
Who to Contact
49, XXXXY Syndrome Association
10001 N E 74th Street
Vancouver, Washington, USA 98662-3801
[360] 892-7547
49, XXXXY Syndrome Association's purpose is to interact with families and individuals dealing with Klinefelter Syndrome . They offer parent-to-parent matching through their newsletter or by calling for more information. Their newsletter, 49er Banner, is published two or three times a year. They have articles about the syndrome they will copy and send for a small fee.
Klinefelter Syndrome and Associates
P.O. Box 119
Roseville, CA 95678-0119
E-mail: ks47xxy@ix.netcom.com
Web: http://www.genetic.org/ks/
Klinefelter Syndrome and Associates has a mission to enhance the quality of KS individuals' lives by assisting in their right of early diagnosis and treatment. They work together to insure KS individuals are treated with dignity. They are advocates for KS individuals and families through active participation in the professional, educational, and research communities at national, state, and local levels. KSA fosters mutual support and create an environment conducive to open communication among our membership.
Where to go to Chat with Others?
KS & Associates Mailing lists
Information on the many KS discussion groups support by KS & Associates
49variant · The 49ers Group
This is a list available only to those parents who have a son with the 49 variant. This list has been formed to provide support, education and information. It is a restricted list and members must be approved by the moderator.
AAKSIS
The AAKSIS E-Mail List has been formed to provide discussion, support, and fellowship for the international community of those medically diagnosed as being XXY (and variants), or having Klinefelter Syndrome, their supporters, family members, spouses, medical, and psychological advisors.
Klinefelter Syndrome Males
This is an open support forum for men with the karotype 47x-xy interested in the exchange of information on 47x-xy, Hypogonadism, Infertility and Klinefelter Syndrome.
Learn More About It
Understanding Klinefelter Syndrome: A Guide for XXY Males and Their Families
About 47XXY/Klinefelter Syndrome
Klinefelter Syndrome & the XXYY variant
Klinefelter's Syndrome Gynecomastia - Breast Reduction Surgery in Men
Links
Klinefelter Syndrome and Associates Web Site
Klinefelter Syndrome Support Group Home Page
American Association for Klinefelter Syndrome Information and Support
Klinefelter Syndrome - A Parent's View
Klinefelter Organisation - Formerly the Klinefelter's Syndrome Club UK (KSCUK)
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