Resources- Specific Diagnosis Card Catalog- Lesch-Nyhan Disease

Who to Contact

Lesch-Nyhan Registry
c/o Lowell T. Anderson, Ph.D.
Associate Professor
School of Medicine, Psychiatry
New Bellevue 18 18E13
Bellevue Hospital
New York, NY 10016
212-263-6458
E-mail: lta1@nyu.edu
Web: http://www.lndinfo.org/

Where to Go to Chat with Others

LNSIA
This group is a gathering for Parents, Advocates and Professionals interested in Lesch-Nyhan Syndrome (LNS)

Lesch-Nyhan Discussion Forums

Learn More About It

Frequently Asked Questions About Lesch-Nyhan Disease

NINDS Lesch-Nyhan Syndrome Information Page
National Institute of Neurological Disorders and Stroke

Lesch-Nyhan Syndrome
MEDLINEplus Medical Encyclopedia

Lesch-Nyhan Disease
The ERIC Clearinghouse on Disabilities and Gifted Education (ERIC EC)

Lesch-Nyhan Disease information from PedBase

Lesch-Nyhan Disease Information
from OMIM

Links

International Lesch-Nyhan Disease Registry

Lesch-Nyhan Page - Italy

Philip's Home Page