Resources- Specific Diagnosis Card Catalog- Muscular Dystrophy

Who to Contact

Muscular Dystrophy Association
3300 E. Sunrise Drive
Tucson, Arizona, USA 85718
1-800-572-1717
Email: mda@mdausa.org
Web: www.mdausa.org

MDA fights forty neuromuscular diseases through a worldwide research effort, a nationwide program of medical services, and professional and public health education. MDA's Medical Advisory and Scientific Advisory committees review projects that will increase knowledge in the neuromuscular field and may lead to treatments or cures for muscular dystrophy and related disorders. MDA's Task force studies all aspects of genetic defects implicated directly or indirectly in neuromuscular diseases. Their patient services program provides comprehensive medical services to children and adults with neuromuscular diseases.

MDA clinics provide diagnosis and follow-up care from specialists. Through local chapters MDA patients receive many other direct services, including assistance with purchase and repair of wheelchairs, recreation at summer camps, and selected transportation assistance. MDA publishes and distributes a wide variety of print and audiovisual materials to promote public understanding and provide information to parents and caregivers of MDA patients. They offer a quarterly newsletter, MDA Reports, a publication "Quest", and a booklet for siblings,"Hey! I'm Here Too!" along with other brochures and fact sheets.

Where to go to Chat with Others?

Muscular Dystrophy Forum
Hello and welcome to "The Muscular Dystrophy Forum", an on line support group for those affected by any one of the 40+ neuromuscular disease's. Our group serves any one afflicted with a neuromuscular Disease and their families, loved ones, and friends

DMD Realities
A support group; for the parents of kids newly diagnosed with Duchenne's Muscular Dystrophy, friends and parents of people with DMD, and for anyone that has DMD. This group will discuss the blunt realities of life with DMD, ways to cope with DMD, treatments and hopeful cures, and how to maintain a good quality of life with DMD.

DMD Support List
The DMDSupport List is an email list for parents, families, individuals facing the challenge of Duchenne Muscular Dystrophy (DMD).

Learn More About It

Basic Facts and Advice

Descriptions of Muscular Dystrophies

Understanding DMD

Muscular Dystrophy
Medline Plus

Links

European Alliance of Muscular Dystrophy Associations (EAMDA)

The Parent Project for Muscular Dystrophy Research

Muscular Dystrophy Ireland

Muscular Dystrophy Association of Canada

VSN - Muscular Dystrophy of The Netherlands

Muscular Dystrophy Association of the USA