Resources- Specific Diagnosis Card Catalog- Menkes Disease

Who to Contact

Corporation for Menkes Disease
5720 Buckfield Ct.
Fort Wayne, IN 46804
(219) 436-0137

This corporation offers a parent and professional network that seeks to provide support and referrals for Menke's Disease families. It also offers a national seminar, networks physicians, a parent newsletter, sibling pen pal program, and a telephone support network.

Where to Go Chat with Others

Menkes Kinky Hair Syndrome
This is a support eGroup open to anyone interested in making friends, sharing information and providing support for persons affected by "Menkes Kinky Hair Syndrome." Affected individuals, family members, friends, medical professionals and rare disease researchers are all encouraged to join this open forum.

Learn More About It

MEDLINEplus Medical Encyclopedia: Menkes syndrome

Menkes Disease
From the National Institute of Neurological Disorders and Stroke

Menkes Disease
From the Online Mendelian Inheritance of Man (OMIM)

Menkes Disease
From PEDBASE

Links

Menkes Foundation

Menkes Memorial Page

Menkes Syndrome Page