Resources- Specific Diagnosis Card Catalog- Multiple Hereditary Exostosis (MHE)

Who to Contact

MHE Coalition
8838 Holly Lane
Olmsted Falls, OH 44138-2701
440-235-6325
440-427-9032
E-mail: CheleZ1@aol.com
Web: www.mhecoalition.com

The MHE Coalition was formed to provide support and information to people living with Multiple Hereditary Exostoses ("MHE") and to reach out to MHE-affected individuals and families throughout the world. Our organization is dedicated to promoting and encouraging research to find the causes, treatments, and ultimately the cure for this rare bone disease.

Where to Go Chat with Others

MHE Chat Page

Hereditary Multiple Extosis
A place for friends to gather and talk about HME

MHE
This forum allows MHE-affected individuals/families to share their knowledge and experiences. MHE affects each person differently. Postings reflect a wide range of experiences, many of which may or may not affect you/your child/or family.

MHE Xray Sharing Group
This group enables people with multiple hereditary exostoses (MHE, also known as Osteochondromatosis or Diaphyseal Aclaisis) to share images from Xrays, MRI scans and so on. It is also intended to provide a place to share details of treatments and symptoms.

Learn More About It

Hereditary Multiple Exostoses: What is it?
From Hereditary Multiple Exostoses Support Group - United Kingdom

Multiple Hereditary Exostoses
From the Multiple Hereditary Exostoses (MHE) Family Support Group

Links

MHE Coalition

MHE and Me - A Support Group for Kids with Multiple Hereditary Exostoses and Their Families

Hereditary Multiple Exostoses Support Group - United Kingdom