Resources- Specific Diagnosis Card Catalog- Anophthalmia / Microphthalmia
Who to Contact
International Children's Anophthalmia Network (ICAN)
5501 Old York Rd.
Philadelphia, PA 19141
800-580-4226
Web: www.ioi.com/ican/index
This organization is a parent support group for families with a child with anophthalmia or microphthalmia. The original objectives of the group are to: 1. Support parents and children; 2. Connect parents; 3. Share information; 4. Provide education; 5. Gather medical/legal/governmental information; 6. Support and encourage research about microphthalmia and anophthalmia; and 7. Support scholarships and grants.
Micro & Anophthalmic Childrens Society (MACS) -- United Kingdom
1 Skyrmans Fee
Frinton On Sea
Essex Encland
United Kingdom
CO13 0RN
Phone or Fax: (0) 1255 677511
E-mail: enquiries@macs.org.uk
Web: www.macs.org.uk
MACS aims to put families in touch with others who have similar problems; to arrange a yearly get together so that parents and children can meet and discuss issues and give encouragement; to produce a newsletter three times a year; to raise public awareness to the needs of visually impaired and totally blind children; and to acquire computer technology for the production of large print and Braille books for the benefit of our children.
Where to go to Chat with Others
Blind / Visual Impairments Online Discussion Groups
Microphthalmia-Anophthalmia Chat Room: Caring Parents
Microphthalmia-Anophthalmia Newsgroup
Learn More About It
Anophthalmia
From the International Children's Anophthalmic Network (ICAN)
Anophthalmia and Microphthalmia: The Search for an Answer
From the Royal National Institute for the Blind
Anophthalmia, Microphthalmia, and Coloboma
From the Micro & Anophthalmia Children's Society (MCAS)
Search the Online Mendelian Inheritence in Man (OMIM)
Links
International Children's Anophthalmic Network (ICAN)
See description above
Microphthalmia and Anophthalmia Site
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