Resources- Specific Diagnosis Card Catalog- Myelin Disorders

Also see: Multiple Sclerosis; Canavan Disease; Krabbe's Disease; Metachromatic Leukodystrophy; Adrenoleukodystrophy; Lesch-Nyhan Leigh's Disease; Parkinson's Disease; and Alzheimer's Disease

Who to Contact

Where to Go to Chat with Others?

Learn More About it

Links

Who to Contact

Organization for Myelin Disorders Research and Support
P.O. Box 54759
Cincinnati, OH 45254-0759
513 -734-6338
E-mail: myelinrs@dot-net.net

This is an international network that was founded in 1996. It provides a communication network among families (and professionals that work with them) who affected by hypomyelination and myelin deficient disorders. It also aims to increase awareness, find causes and treatments, and fund research. In addition, it provides information and referrals, phone support, advocacy, and a newsletter.

Where to Go Chat with Others

Myelin-mail
A service for families, friends and professionals dealing with children's myelin related disabilities.

Myelin Disorder Web Board

Learn More About It

Neuropathies With Abnormal Myelination

A Look at Myelin and Myelin-Related Disorders

Links

Myelin Research News

Myelin Project

Pelizaeus-Merzbacher Disease Foundation