Resources- Specific Diagnosis Card Catalog- Myotubular Myopathy

Who to Contact

Myotubular Myopathy Resource Group
2413 Quaker Drive
Texas City, Texas, USA 77590
(409) 945-8569
Web: www.mtmrg.org

Myotubular Myopathy Resource Group facilitates family-to-family; family-to-researcher; physician-to-physician contact for persons with an interest in Myotubular Myopathy. They match affected families with others in their geographical area. The Group occasionally publish a newsletter for affected families

Where to go to Chat with Others?

Myotubular Myopathy
A Rare Disease Support eGroup for People affected by 'Myotubular Myopathy'

Learn More About It

Myotubular (Centronuclear) Myopathy Information
from OMIM

Frequently Asked Questions (FAQs) about Myotubular Myopathy

What is Centronuclear / Myotubular Myopathy?

Myotubular Myopathy (MTM or MM)
Information from MDA

Myotubular Myopathy: Centronuclear Myopathy
Information from Contact a Family - UK

NINDS Congenital Myopathy Information Page

Congenital Myopathies
from eMedicine

Links

Myotubular Myopathy Resource Group

Centronuclear & Myotubular Myopathy Information Point

The Joshua Frase Foundation