Resources- Specific Diagnosis Card Catalog- Giant Congenital Nevi
Who to Contact
The Nevus Network
The Congenital Nevus Support Group
PO Box 305
West Salem, OH 44287
419-853-4525 (phone)
405-377-3403 (fax)
E-mail: info@nevusnetwork.org
Web: www.nevusnetwork.org
Nevus Network's mission is to provide a network of support for those with large birthmarks called giant congenital nevi through letters, telephone calls, and personal meetings, and to share medical and psychosocial information. They have local chapters and will provide assistance to individuals who wish to start a support group in their locality. They provide parent-to-parent matching through their member directory.
Nevus Network publishes "The Nevus Network Newsletter" on a periodic basis at no cost to members. They also have fact sheets, brochures, and a new member packet. The Network has a bibliography of books and articles that pertains to nevi and is available to members.
The Network provides information only. It does not provide medical advice or physician referrals at all. You MUST consult your own personal physician for all medical advice.
Nevus Outreach, Inc.
1616 Alpha Street
Lansing, MI 48910
E-mail: info@nevus.org
Web: www.nevus.org
Nevus Outreach is a non-profit organization dedicated to improving awareness and finding a cure for giant congenital nevi and related disorders.
Where to go to Chat with Others
NOI Support
Created and maintained by Nevus Outreach, Inc (http //www.nevus.org)- For people concerned with a rare disorder called Giant Congenital Nevus, and related disorders such as Neurocutaneous Melanosis, to have a way to share experiences and support each other.
Learn More About It
Links
The Nevus Network Support Group
The International Association of Giant Nevus and Birthmarks
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