Resources- Specific Diagnosis Card Catalog- Noonan Syndrome

Who to Contact

The Noonan Syndrome Support Group, Inc.
P.O. Box 145
Upperco, MD. 21155 USA
888-686-2224 (U.S.)
410-374-5245 (all others)
E-mail: info@noonansyndrome.org
Web: www.noonansyndrome.org

The Noonan Syndrome Support Group, Inc. is committed to providing support, current information, and understanding to those affected by Noonan syndrome and its associated anomalies. It is also our goal to raise the awareness of, and educate the medical community as to the complex nature of this syndrome and how it affects the lives of those who have it. With the help of our members from around the world we hope to be able to provide further research into the areas of symptoms, diagnosis, treatment and outcomes related to Noonan syndrome. We recognize the importance of linking patients, specialists, and researchers from around the world to improve our understanding of this disease and are committed to helping establish connection across the globe.

The Group is intended for people whose lives are touched by Noonan Syndrome, and want to exchange experiences and hopes regarding our children (or us). Associated professionals are also welcome. We offer support, networking and information. We aim to create greater awareness amongst professionals and the public at large. We support research into the many aspects of this complex condition.

Where to Go Chat with Others

Noonan Support
This is an open forum rare disease support eGroup for persons affected by "Noonan's Syndrome," family, medical professionals and anyone else interested in sharing information and/or support for affected individuals.

Noonan Syndrome
The Noonans Syndrome Support Group

Learn More About It

Noonan Syndrome
From eMedicine

Noonan syndrome
MEDLINEplus Medical Encyclopedia

Noonan Syndrome Information
from OMIM

Links

Noonan Syndrome Support Groups Web Page

Noonan Syndrome Society