Resources- Specific Diagnosis Card Catalog- Pseudoxanthoma Elasticum (PXE)

Who to Contact

National Association for Pseudoxanthoma Elasticum (NAPE), Inc.
8764 Manchester Road, Suite 200
St. Louis, MO 63144-2724
314-962-0100
E-mail: pxenape@napxe.org
Web: www.pxenape.org

Nape is an organization committed to the support for people who have Pseudoxanthoma Elasticum (PXE). Pseudoxanthoma Elasticum, is an inherited disorder that affects the skin, the retina of the eyes and the cardiovascular system. NAPE is headquartered in St. Louis, Missouri. Everyone with PXE and those with an interest in PXE are encouraged to join this organization.

PXE International, Inc.
4301 Connecticut Ave., NW Suite 429
Washington, DC 20008-2369
202-362-9599
202-966-8553 (Fax)
E-Mail: pxe@pxe.org
Web: http://www.pxe.org

PXE International offers support for affected individuals, their families, clinicians and researchers. 45 51 offices around the world help provide local contacts for the more that 1600 2200 registered individuals. Our database of over 6000 clinicians familiar with PXE is available to patients seeking a dermatologist, ophthalmologist or cardiologist. We provide medical and lay bulletins about the various systemic manifestations of PXE. We have a quarterly newsletter. We also have three on-line discussion lists. All services are free of charge, as is membership. We initiate and support research and manage the PXE International Blood and Tissue Bank. We coordinate the PXE Research Consortium.

Where to Go Chat with Others

PXE General Discussion List
PXE (pseudoxanthoma elasticum) International's mailing list on the Internet. We have established this list to provide a place for people interested in PXE to discuss the disorder, its medical implications, advances in research and possible treatments.

PXEchat
A place for those affected by pseudoxanthoma elasticum (PXE) to chat

PXEannouncements
This list is announcements only - to provide the PXE community with events and research news.

Learn More About It

The Nature and Nurture of PXE

PXE Questions and Answers

Your Child and PXE

PXE--Frequently Asked Questions

Pseudoxanthoma Elasticum (PXE)
Information for Patients

Pseudoxanthoma Elasticum Information
from OMIM

Links

National Association for Pseudoxanthoma Elasticum (NAPE)

PXE Awareness in Australia Web Site

PiXiE - Pseudoxanthoma Elasticum Support Group United Kingdom

PXE International, Inc.